Last reply 2 weeks ago
Waiting…

Hi, I am waiting, and I hate it 😀 Saw the consultant beginning of April to discuss treatment options, she was more in favour of Lemtrada, I was more in favour of Ocrevus. She said a MS nurse would contact me, and I have an appointment next with the consultant in November. So will the nurse contact me, arrange for the tests, and then I start Ocrevus before November? I don’t think I have any alternative since Lemtrada was restricted in new patients last I heard?

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stumbler
2 weeks ago

@thequietlady , you’ve been patient, so there’s no reason why you shouldn’t contact your MS Nurse to understand what’s happening. Maybe it’s time for the Quiet Lady to make some noise.

Update this post if you need to locate contact details for your MS Nurse.


thequietlady
2 weeks ago

Thanks @stumbler, apparently Grace or Freya at the Royal London will be my nurse, I have no way of contacting them


stumbler
2 weeks ago

@thequietlady , PM sent.

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