I have just logged in as I am waiting to see a neurologist next week.
Sorry for the long post in advance..
I suffered with migraines most of my young adult life.. with aura and severe pain.. so much so I was bed ridden at times. Not really a day without a headache then I had my second baby and they disappeared. (Thankfully) anyway fast forward 15 years and I had a couple of episodes of a numb left arm.. Gp put it down to trapped nerve! No further problems just occasional sharp shooting pains in my feet. Came and went not debilitating.. always had restless legs .. no pain just had to move legs or lay down.
Moving forward 5 years .. and I had a very random episode of numbness and tingling in left side! All way down my body.. should have gone to the hospital then but just went home from work and it went..
then I noticed I had a patch of numbness in my left bicep and a patch on my left shoulder blade. This is still there.. I then had another episode of tingling and pins and needles all down left side and went to A&E they gave me a CT scan of Brain and it was normal so home I went.. that night it spread all over my body aside from my face and right arm.. I was awake all night because it also felt like Something was pressing on my neck! I was truly terrified
I went to the walk in GP next day and he said my reflexes were brisk and prescribed pregablin for the nerve pain???
I then went to my own GP who took note and did an urgent referral to neuro. I had a full bottom half Neuro assessment and both my plantar reflexes were present
I have since recovered from the tingling but it has left a numb toe and sometimes I get the odd few minutes of pins and needles in my fingers.
I have also lost the urge to urinate I can still go with good output but no real urge.. I have seen a nurse about this but she said I am working okay in that department but referred me to her consultant anyway.
I am unable to sleep so fatigue isn’t a problem more a mental thing I think..
I am aware at mid life if this is MS I am
Likely to have the progressive form and I worry what effect this will have on my working life (I work full time) and my partner and children.
I am hoping to make some friends who understand what’s going on so please feel free to chat. Xxx
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