Not been around for a while as I just got too frustrated 🙁 sorry.
I thought I should be on the DMT as I followed the guidelines on here and NICE but my consultant wasn’t doing it, said my last MRI didn’t show what he needed etc.., so was very frustrated and didn’t know where to go next.
I then went through Best Doctors through work and they reviewed everything, took a while but got there and an expert reviewed and came back and said I wasn’t in a 3rd world country so I should be on the DMT.
My local doctor was very supportive but couldn’t see what to do he thought it was all to do with funding. So he wrote a letter to my consultant in Jan / Feb, it took till last week to actually get a response to which I meet with my consultant again, I was relapsing (sensory) again, which I also said I wasn’t speaking to the nurses as I had little or no response from them or they always said nothing to do with the MS and ended up wasting my local Dr’s time and it was so I have no faith in the nurses.
The result of the meeting last week is I am on steroids again, he is now booking me in for another MRI (6-8 weeks booking time) then he will look at which DMT I go onto.
So in a way it was quite positive I was relapsing when I saw him, as it gave him an out to get me on a plan 🙂
Sorry for the long note I’m just tired and steroids aren’t working as well as before but I am sure it will be fine after I finish this week.
Just thought I would do an update.
Thanks all for listerning
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