I recently moved hospital and had a full assessment by a neurologist, resulting in being given my EDSS score for the first time. After reading the MS society website information about the scoring system, I always thought I’d be around 1 or maximum 2… but I got a letter saying I have a score of 3.5-4.
I’m oddly upset about this, even though it obviously doesn’t change how I get on from day-to-day. If there’s anyone else out there with a similar EDSS would you mind posting or messaging me with your symptoms?
I would really consider myself to be completely fine most of the time, with some visual impairment (not fully recovered from ON), bladder urgency, reflexes are different on left side but no weakness or difficulty walking, some sensory issues and a bit of neuropathic pain.
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