Last reply 1 year ago
Tysabri

Since having tysabri on Wednesday I still have a throbbing headache, cannot tolerate loud noise, neck and shoulders hurt, throat hurts (swallowing hurts), my whole body aches and am in quite a fair bit of pain, feel soooo fatigued and haven’t been able to do anything. Is this related to the tysabri infusion?

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stumbler
2 years ago

@azngal1988 , are you a relatively new user of Tysabri? If you are, I’d have a word with your MS Nurse to discuss this issue.

If you’ve been on Tysabri for a few months or more, then I’d be looking for another explanation. Your symptoms sound like they could be a case of flu. Do you have a temperature too? At this time of year, there’s a lot of flu around, and it’s spreading.

It’s for this reason that the annual flu jab is recommended for MSers.

I hope you feel a bit better this morning.


christine-lever
1 year ago

I had my first Tysabri infusion on March 1st. I felt ok while in the clinic but on the way home I started to get a headache, by evening it was like a migraine. I also had a burning throat and my skin was sore all over. This lasted for two days then gradually disappeared. I’m hoping when I go for infusion number two I don’t get a repeat of the headache, sore throat and skin. I suppose that as flu like symptoms post infusion can be a side effect of the medication that this is what I experienced. I have been fine since, just the usual MS symptoms I get.
As you posted this in January I’m hoping that you are well by now. 😊

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