Last reply 3 months ago
trying to be positive

Hi everyone I am now 28 years old I was diagnosed 10 years ago. For the first 9 and a half years I was doing great with a few minor relapses( ironically only when I was single) I have a law degree and was on my way to finishing my articles and passing the bar. Then in about August 2018 things took a turn for the worse, I had to leave my articles due to not being able to walk, I have to use a wheelchair and my boyfriend cheated on me(guess bad things do happen in threes). I was hoping 2019 would be better I guess I have my ups and downs it gets super frustrating how my goals and dreams have changed, been prolonged or have been forgotten altogether. I do try and be positive but it gets increasingly hard with each setback

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stacey
3 months ago

@erusha I was diagnosed at 18 and I have been fine then 4 weeks ago I had a relapse, I was in hospital for a week on steroids but luckily, my head and my arms, iv got everything back now. It’s so hard to not to think about what’s going to happen isn’t it? Are you in a wheelchair all the time? I do hope thing get better for you 😊.


erusha
3 months ago

@stacy luckily it’s not all the time just when I go out, the future is scary at time


stacey
3 months ago

@erusha it’s so hard isn’t it, are you on any medication for your MS?


erusha
3 months ago

@stacy I’m on Tuvigin since the end of last year, prior to that I was on avonex it’s such a relief not have to inject myself weekly
Out of curiosity do you consume alcohol. I’ve seen studies for and against drinking I stopped drinking in 2011, I think a drink every now and then might help😏


rogersouthall
3 months ago

it is hard and I have read your responses listed, you are all so young. I really have no answers but I try to stay positive, http://www.wholesorts.com I write monthly, basically to let people know what we suffer and also to show that we are all still human.
I say it all sufferers, if your don, there are sites like this or shout out directly to people, stay as well as you can x


erusha
3 months ago

@rogersouthall, thanks for your encouraging words I will look up your site as well 😊


stacey
3 months ago

@erusha i used to be on tusabri but I tested postitive for the JCV virus after 8 years. So I’m on Conpaxone, iv been on it 2 years but just had a relapse. I drink about twice a week, my ms is stable at the minute iv just started taking CBD oil last night xx


erusha
3 months ago

@stacy in South Africa we’re very behind when it comes to research and treatment, I was under the impression that once off tsabri there wasn’t an option available, so whilst on tsabri you never had a relapse?
How’s the oil going? Does it help with the pain?

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