ms-man 11/06/18
Last reply 4 days ago
Trolls on here

Im just wondering what the other genuine real users think about the trolls on here? Im just wondering if the trolls that come on here realise they are easily traced and exposed in seconds!! I think they should seek help for their own pathetic issues.

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stumbler
1 week ago

@ms-man , I’m not aware of any trolls on this site, which is closely monitored. However, if you’re concerned about anything, you should report it, https://shift.ms/contact .


doubleo7hud
6 days ago

I apologise if you take offence to me I’m from Yorkshire 😂


ms-man
6 days ago

@ stumbler There was something mentioned in the past on here, not too long ago about getting friend requests then there accounts vanished quickly,as same thing happened to some of my friends i got these requests too but declined them all and kept quiet about it who ever is behind them,It still happens from time to time, what ever their point is in doing this…who knows! what I do know is i will never speak to anyone ever again that has ever upset or been dishonest with me on this site.


rotherhamdave
6 days ago

I’m Yorkshire too 😂


ms-man
6 days ago

@doubleo7hud and @rotherhamdave iv got a confession to make….im addicted to yorkshire tea and iv got no idea where yorkshire is pmsl ,its the only brand i buy or like in the shops 😂


rotherhamdave
6 days ago

Lol, u’ll sense where Yorkshire is once the tea is in ur system


ms-man
6 days ago

I think its getting well and truly in my system whatever their secret ingredients are lol


doubleo7hud
6 days ago

If owt gonna cure this sh1te it’s yorkshire tea, feck me it makes me feel better.


doubleo7hud
6 days ago

PS milk and three sugars is the key 😉 needs to look a golden brown ish 😂


stumbler
6 days ago

@ms-man , I see you’ve met our resident Yorkies!

Anyway, back to the trolls. Occasionally, we get an internet “undesirable” join the Forum. They just want to harvest email addresses for some purpose or another. We normally identify these intruders pretty quickly and remove them, hence the notification of Friend Requests that you can’t find.

We also have genuine MSers that join the Forum, who feel were a bit like Facebook. So, they try and see how many Friends they can acquire. There’s no problem with that. Members can either accept or reject these requests.

Personal Messaging is just that. It’s personal between two members, who have had a Friend Request accepted. We cannot monitor that activity, so we rely on members advising us of any inappropriate messages, so we can take action.

We appreciate that our membership can be seen as a vulnerable audience. We are all interested in the next big thing to make our life easier. But, we do not want to be ripped off. We do try and root out these “snake oil” salesmen.

So, any problems whatsoever, then let us know.

Enjoy your tea from Yorkshire, but beware of the natives! 😉


ms-man
6 days ago

@stumbler Iv hardly spoke to anyone on this site in ages to be honest, the majority that I have spoke to have been nice and helpful with MS related things I include yourself in that, I apologise to any genuine person that I have ever declined, normaly if i post anything i try to make it funny as I try to make people laugh and find laughter better than any medicine,but when i remove my head from the clouds I can accept that im as good as finished.


ms-man
6 days ago

@doubleo7hud and @rotherhamdave please dont be alarmed at my yorkshire tea addiction as I have came to an agreement with yorkshire not to drink their entire stock of yorkshire tea as iv promised to recycle my yorkshire tea and I put my teabags out on the washing line to dry then use them again the next day! 🤣🤣


sherryak
6 days ago

Ok, I am going to HAVE to find some Yorkshire tea! I’m guessing that it maybe has a little brandy or something in it????? Possibly a little Mad Dog 20/20 in there???? 🤪


stumbler
6 days ago

@ms-man , you don’t need to speak to people all this time. The Forum is here when you need it.

You don’t have to apologise for declining Friend Requests. That’s your prerogative. Usually, the requests come from a “Friend collector”, who has sent out multiple requests so wouldn’t notice the odd decline.

Yes, I agree with laughter being the best medicine. I’m thinking of moving to Yorkshire for more “treatment”! 😉

And, never think that you are finished. Philosophically, we are all finished from the moment we are born, so we’re no different to anybody else. 😉

Take care.


wobbler
6 days ago

I have only been here for a week or so and I have seen nothing in the way of trolls. You would have to be a pretty sad lowlife to troll a site whose primary purpose is to enable community with sufferers of a chronic illness. If I come across anything remotely suspicious I will inform the admin immediately.

I wish I had found this forum years ago. I have already been messaging a couple of people and I am quite excited about going to the meet-up organised by @mimiblanc at the Southbank next month.


wobbler
6 days ago

sorry… that should have been @kimiblanc …my typing is shocking!


ms-man
6 days ago

@sherryak there is no alchol in the tea at all but id say its the best tea iv tried, I tend not to drink alchol because im crazy enough as it is lol,and alchol just depresses me,makes me sad and cry pmsl 🍺🍷🍷🍺 🤣🤣


ms-man
6 days ago

@wobbler I regret this post and normaly just block anything negative or bad out but if im honest iv recently developed depression for 1st time in my life and I feel embarresed about it probably due to never ending setbacks and its made me had a moan on here, theres definately been a change in me as I never used to take take life too serious, I hope that ur meetup is an enjoyable time for yourself and others,I think something like that would do me some good in future but these bloody MRI machines like to give me new surprises on top of my MS as MS was too easy for me to deal with haha 🤣🤣


wobbler
6 days ago

@ms-man yeah, it’s hard and I had the depression too. Your life gets turned upside down and it isn’t easy to get back the right way up. MS is a bugger but we all still have a life and we have to make the best of the situation we are now in. One of the best ways of dealing with it is to talk about it which is what is so good about this forum. The people I work with know about MS but I doubt they really understand the heartache and frustration that goes with it. The members of this forum do and have mostly experienced the same stuff.
Be lucky.


stumbler
6 days ago

@ms-man , yes, depression is an occupational hazard when you carry the burden of MS. So, don’t see it as a weakness and do consult your GP if the burden seems to become too huge.

We all need a bit of help from time to time.

And, as @wobbler suggests, do come on the forum to offload any bad thoughts. We’ll all understand why you’re doing it. A problem shared is a problem halved.


sherryak
6 days ago

@ms-man, I was only joking about the alcohol. I have often said (since being diagnosed with MS) that if I had this back when I was in college, I would have saved myself & my dates a lot of money that we spent on alcohol. With my vision as wacky as it is now & my balance issues, I’m a cheap drunk now. A case of beer can last me a year or 2 now. I have about 4 bottles of wine that I got when I moved in 2014 that have never been opened. They’ll probably last me at least 4 or 5 more years. No, my alcohol jokes were completely jokes because of the love for that specific tea. I am going to have to try that tea though; I’m curious now. 🤪


peterfrancis
6 days ago

Not aware of any Trolls on this site at all, sure there is or has been some, it is the internet of course.

Those Troll types of folks should seek some form of help for their behavior and help for their own insecurities and issues……. Or, let them continue until they are they caught out, then round them all up and drop them from a great height minus a parachute. Or, cut off their hands so they can’t use the internet.


ms-man
5 days ago

@stumbler I sometimes say to myself why bother mentioning anything as it changes nothing and then if I mention anything i feel depressesd talking about it,it feels like a no win pointless sitiation lol 🙂


ms-man
5 days ago

@sherryak I guess I avoid alcohol because of having MS and surving two other serious problems with brain,what iv learned from brain specialists is me having one drink now is like the equivalent of having five or six drinks, somtimes I forget that cos some days i feel really good as i did when i was younger,and its only when iv had a few I realise im not the same person as I was when younger and need to be carefull. So now i normally stick to tea etc 🙂


ms-man
5 days ago

@peterfrancis there is good and bad people everywhere in life, I guess I prefer to make my own judgement on people in real life situation, as the internet could be a bit of a lottery as we cant make a proper judgement on anyone but as for people like myself Internet can be only communication with the outside world at times, so I guess I need to be cautious like everyone else online 🙂


sherryak
5 days ago

@ms-man, About the depression you mentioned… I know you don’t have this issue since you’re ms-MAN, but several years ago, my PMS every month sent me through the roof. When I found myself sitting in the local library’s parking garage after work one day & crying extremely hard (with yelling) because of work-frustrations, I sought help. The doctor put me on Prozac for a week each month during PMS. It really helped & I no longer wanted to beat up my annoying co-workers all the time. When I was diagnosed with MS, the neurologist told me that I needed to start taking the Prozac every day & not just during PMS. I actually take & prefer the generic Fleuoxitine. I am SO GLAD I was put on that path. When I get too far down now, I allow myself to wallow in the misery for a little while. Since I embrace it & don’t fight it, I usually get over it in no time. Typically, I’ll cry myself to sleep (because I can sleep anytime anywhere.) When I wake up, I’m usually happy & ready to go. I don’t know that everyone should allow themselves to wallow in the negative. I just thought I’d mention my routine in case it helps any. But as far as medicine, no one cares about what you take (except your fellow MS suffers) so don’t let your view of what-might-be impact your true reality. If taking medicine gives you some relief or helps you make it on time, stop punishing yourself – take the medicine. We ALL need a little help sometimes.


stumbler
5 days ago

@ms-man , it’s therapeutic to discuss your problems and to share how you’ve managed to resolve them.

Putting your problem into print helps to absolve you of that problem. After all, a problem shared is a problem halved. 😉


sherryak
5 days ago

@stumbler – About discussing our problems… I started out going to the PatientsLikeMe site when I was first diagnosed. Because of all of us being in the same boat with sites like this, I have gotten some excellent suggestions for things to try with some of the different “challenges” that we face. When I started Techfidera, I had no clue that some of the weird & annoying things that I was enduring was related to the medicine until I found similar things that other people were saying that also took it. I think that sites like this help you to see that you’re not alone or enduring something no one else has ever had. Sites like this help you keep your sanity.


grandma
5 days ago

Dear ms- man,my ms nurse says we shouldd all be on a small dose of anti-depressants just because of the ms. When I was in a real state earlier this year she doubled my dose from 10 to 20 mg of Paroxetine , I was about to halve my 10 mg dose by cutting the tablet in half (they don’t do paroxitine in 5mg) but never gto roundto it, just got back on the 10mg one, but she said even people with mild ms need a low dose just to keep them sane whilst dealing with a myriad of strange symptoms. It works. As Sherryak and Stumbler have said talking about it helps and as we are all in the same boat, you can talk, or rant or whatever you like on here, we’re always here to listen.😍


ms-man
4 days ago

@stumbler @sherryyak @grandma to be honest I dont think anti depressants will work or the answer to my problems, I think I will always feel destroyed and hurt emotionaly inside, I dont think I will ever get over trying to convince many doctors ,ex partner or employers I wasnt imagining things were wrong, despite finally getting an MS diagnosis and going through two different types of brain ops I look as though Iv sailed through life with nothing wrong with me at all, I feel like my heart has been ripped out permanently for past decade, I can handel any illness or disease and would never lose any sleep over it and honestly dont care what will happen next with my conditions, its so tough all of this and no easy answers 😢😢 but I appreciate peoples comments and opinions/advice it means alot 🙂 . on a positive note the world cup starts today and im looking 4ward to it as I love football lol ⚽⚽⚽


stumbler
4 days ago

@ms-man, I can assure you that we all feel a bit destroyed and emotionally frail. It’s dealing with a feeling of loss that never goes away. But, anti-depressants can help. They put your brain in a slightly better place.

And, yes, the world cup this afternoon :-

The England Football team visited an orphanage in Russia yesterday.
“It’s heartbreaking to see their little faces with no hope”

said Vladimir, aged 6.


ms-man
4 days ago

@stumbler , when I feel down i’m always telling myself Id rather I had this torture than someone who has not even started out in life yet, there is always someone somewhere in this world much worse off, it is a cruel world out there.
So far anti-depressants are not making much of a difference,but i will give it more time and if a change is suggested than id try that too, because id never take the cowards way out, the way my health is I doubt I will have to wait too many years to be out of my misery and then of course the yorkshire residents on here might want to kill me for drinking all their tea lol 🙂 🙂

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