Last reply 9 months ago
Trigeminal neuralgia

Hi everyone,
I have have been having horrendous facial pain for a while. I thought it was sensitive teeth but after a few dentist’ visits I was told it wasn’t. My GP then confirmed it was Trigeminal Neuralgia. He told me it was nothing to do with my MS and prescribed carbamazepine. I was on it a few days. No change to the pain and I noticed that my other symptoms have been getting worse. My wonderful MS nurse confirmed that my TN was an MS symptom and that I was having a relapse. She got me steroids- methylprednisolone which I’ve been taking since Friday. Anyway- I don’t see any improvement. My walking is awful, I fell at work and I’m taking a few days off. I can barely eat or speak my facial pain is so bad. Has anyone suffered from this? Does the carmamazepine start working eventually? I’m really struggling😕 any advice?
Anna x

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9 months ago

@condansmum , Trigeminal Neuralgia (TN) is a debilitating pain. Carbamazepine is the pain relief of choice, but keep talking to your GP is this pain relief is not working.

There’s some details about TN here :-

As for the Steroids, they are not an immediate fix. They work by initially addressing the inflammation on your Central Nervous System (CNS) to stop the relapse. And, then the Steroids work with your body to help you recover from the relapse.

The steroids will be working with you over the next 6 – 8 weeks to effect this recovery, although it does need you to allow this recovery to happen.

So, take things easy. 😉

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