Last reply 2 weeks ago
This is my story…

About 21 years ago, my daughter who was almost 20 at the time woke up with numbness over half her body. She was at college and came home and saw a neurologist who did an MRI of her spine and saw a lesion and told her to go back to college and it would probably go away which it did. He said that people can have transverse myeliyis With no other diagnosis. Soon after, she woke up again unable to see out of one of her eyes. So she went to an Ophthalmologist who said she had optic neuritis and along with the other diagnoses could possibly have MS. She came home saw the neurologist, had a brain scan and was diagnosed with MS. She went on Avonex. We were shocked because nobody in either family was ever been diagnosed with MS.
. ….
FlashForward to three years from then when I woke up with transverse myelitis. I knew what it was right away. Had an MRI shortly afterwards showing two lesions on my spine. Then had a brain scan showing numerous inactive lesions. See transverse myelitis Went away except it left me with permanent numbness of the toes and balls of my feet.Not too long after I started Copaxone and was on it for 13 years until this year ( at age 71 ) when I decided To come off it after reading numerous articles about possibly coming off medication. Other than the transverse myelitis and some MS hugs which no one seemed to know what they were before this, And some chronic bladder issues which could or could not be MS,I have been OK with no progression.

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dramaqueen
3 weeks ago

How wonderful pleased you have lived a full ms free life.x


itasara
3 weeks ago

@dramaqueen I can’t say it it’s all MS free but at least I’m free up injections for the time being which has done somewhat of a job on my skin over all these 13 past years.


vixen
3 weeks ago

Hello @itasara, well done you for powering on through! What about your daughter, how is she doing.


itasara
3 weeks ago

@vixen My daughter is doing extremely well. She think she’s basically cured which I think is a little optimistic but she’s one of these positive people and she barely discusses MS with me.


amber_steele_jack
2 weeks ago

your daughter had the exact same symptoms I did! I’m so happy to hear that she is doing well 🙂


amber_steele_jack
2 weeks ago

How are you doing?

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