curlyclaire 24/11/14
Last reply 3 years ago
Tecfidera headaches??

Hi everyone just wanted to know if anyone has suffered persistent headaches as a side effect of Tecfidera?

I have been taking it for approx 4 weeks now had all the very common side effects, however these soon subsided and are now only occasional. Over the last week and a half I have had a persistent headache that is effecting my work, and strugglingwith fatigue. I am not sure if this is a side effect or something else, as work has been a bit stressful recently.

I have a GP appointment tomorrow and will contact the ms nurse, but wondering if anyone else had suffed the same?

Thanks for readinging another one of my moans and hope you are all doing your best at beating ms!

🙂

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stumbler
3 years ago

Unfortunately, headache is a documented side-effect of Tecfidera. I’m not sure that your GP will be much help, so try and contact your MS Nurse to discuss the situation.


curlyclaire
3 years ago

@stumbler I’ve read it can be a side effect, ms nurse didn’t think it was and didnt tell me anything I don’t already know. I’m sure the GP will be like what do you want me to do about it! At the moment it’s effecting my ability to do my job and I’m just fed up! Think abit of time out is required! 🙂


stumbler
3 years ago

@curlyclaire , that’s shocking that your MS Nurse is not aware of the potential side-effects of these drugs.

I have read that this may be a passing phase and should resolve itself. But, in the interim, I’m sure you’d like to know what to do about these headaches. Whether Ibuprofen, paracetamol or Aspirin are recommended.

On that basis, give the MS Society Helpline (0808 800 8000) a call and see if they can answer the question.


curlyclaire
3 years ago

Thanks @stumbler I was considering the MS helpline. The MS nurse said she was seeing the drug rep today and would get back to me if had any further info. The advice was just to stick at as hopefully it will subside, which I know but doesn’t make it any easier. I’m going to have to take the GP up on the sick note which I didn’t want to do but I can’t work like this! Then again the break would probably do me some good 🙂


stumbler
3 years ago

@curlyclaire , a break may help, but it would be good to have some guidance about what pain relief you can use.

There is an ongoing trial, taking Tecfidera with aspirin, to see if that can address some of the side effects.

I hope the situation improves for you.

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