Just wondering what all those diagnosed do whenever they have a bad patch.
I am currently going through a rough patch, 5 weeks long so far.
Currently numb on about 60% of my left side also less numb patches on my right side, my feet feel like they are burning with ice burns (hold a handful of ice cubes for as long as you can to get the idea)
As of today finger tips are starting to feel the same.
Multitude of other symptoms I could bore you with but I think you get the idea 🙂
My query is do you go to the Doctors whenever relapses happen or do as I do, which is suffer in silence.
Reason being is that my Doc’s are just not interested in helping as apparently there is nothing they can do.
Example, I suffer quite badly with random dizzyness, vertigo as they call it but the Doctors basically said there’s nothing much they can do about it, they did send me for tests to eliminate other causes and they all came back as negative, Doctors are no longer interested.
As a rule I do not make a fuss regarding my MS as I understand I drew the short straw and so deal with it in my own way but my wife and family say I should make more of a fuss with the medical profession and get the help I need, my response is ” why bother, nothing they can do about it”.
At this point I should say that when I was first diagnosed they did try a couple of various pills which either did nothing worthwhile or made me feel worse in other ways.
Currently I take naproxen as and when needed for the pain but nothing else.
I do feel let down by the medical profession but at the same time I don’t want to waste anyone’s time over something that can’t be helped.
My MS nurse says I should report my relapses so it can be logged to track my problems but I see no reason to dwell on it if nothing can be done so I just try to get on as best as I can. I suppose it does suggest to them I have no problems as I don’t run to them every time things go wrong.
On the other hand there’s nothing worse then dragging myself to the Doctors just to be told ” nothing we can do” .
Over to you, what do you do ?
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