I’m 22 and was diagnosed around 3 years ago, but experienced symptoms for about 5-6 years. I was told I had MS just before my 19th birthday through a letter in the post. No warning, no phone call, no explaination or help sent with it. Alone and worried I googled about MS and of course all the symptoms came up – frightening as it was, I was just told to remain positive. But no matter how much I remain positive about everything I still feel like there’s something missing. Does anyone else feel like they sometimes get a bit lonely? I don’t know anyone else with MS and even though I have supportive family and friends it just feels like there’s still a bit of emptiness in regards to my MS. No one truely understands what it’s like to have MS unless you have it yourself. It’s so difficult explaining my symptoms especially fatigue to others as they think I’m always being lazy or over exaggerating and just need to ‘get over it’, I mean there are worse off people in the world? It would just be nice to have some of the caring attention on myself when i’m weak/fatigued rather than being reminded that other people have it worse in the world :/ does anyone else experience that? I feel guilty for the symptoms I get, and I feel like I always have to explain myself so that people don’t think I’m making things up. It would just be so nice to speak to someone who is going through the same as what I am going through so that this void i’m feeling can go away .-.
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