Last reply 4 weeks ago
Stem cell oct 2018

Right guys, sorry if this is too obvious but in this article i read

….some patients in original group continued to get worse early on after transplant, he added, “but we think that was due to previous disease before the transplant. There can be an early degenerativer phase, but that levels off quite quickly.”….

So it won’t stop progressing

It is also quite upsetting how they carefully choose the patients for the trial: Young people with less than a year diseasey (5 months, my h…..!) aggressive decline…….., ( am I mad to assume that we all go to “aggressive disease” at the beginning and all comes back to feeling better afterwards …..they could be in remission after transplant

Agresive declin is b…. now, Spms!

Sorry for the rant, sick and tired……literally

https://www.medscape.com/viewarticle/903404?src=wnl_edit_tpal&uac=283459MY&impID=1770077&faf=1#vp_2

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


stumbler
4 weeks ago

@mmhhpp , it is frustrating and your rant is justifiable.

Yes, the choice of trial participants was very careful. And, I’d love to know how you could have multiple relapses if you were only diagnosed five months ago…….

But, we have to be philosophical and realistic. Stem Cell Therapy is still very much in the “proof of concept” phase. The initial trial participation would always err on the side of favourable outcomes. Success would then allow you to progress towards more “complicated” participants.

It’s the old adage, “fail to prepare, prepare to fail”. In this case, the preparation was to ensure every chance of success. This would allow the treatment to be further researched with a wider range of participants.


juliam58
4 weeks ago

HSCT can be used for all types of MS and has an 80% chance of stopping progression. Straight after treatment most people do get a lot worse and it take can take a year to get back to baseline but I think it’s well worth it if it stops further progression. It is now possible to get it on the NHS in London and possibly Sheffield but it is true there are not many spaces. The age limit is 65 and you must be able to walk a short distance, with a stick if needed. If you are interested in finding out more your best bet would be to get a referral to see Dr Nicholas at Charing Cross or privately ( that would be best) to see if you might be eligible. There are neurologists who can put your name forward but I am not sure what their names are although there is at least one at Kings ( Dr Singh?)
Lots of people also pay and go to either Mexico where they have treated over 600 people or Russia . Overall I think 3000 to3500 people have been treated with HSCT throughout the world!

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.