Last reply 1 year ago
Starting Lemtrada – wait time

Hi all,

I have my first appointment with an MS specialist on 28th March after having been diagnosed by a neurologist a few months ago. I’m expecting to take Lemtrada (it’s available for me as a treatment) but had a question regarding timings. I’m trying to plan some things I have going on in April and wasn’t sure how early I would start the treatment, assuming myself and the specialist agree on a treatment on 28th March. Is the wait to start Lemtrada normally fairly short or could I be looking at months?

Thanks,

David

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


doubleo7hud
1 year ago

I’m gonna try push for lem too Just waiting on ms clinic appointments to drop through me door. If your busy in April and that’s when your lem is due il pop down from sunny Yorkshire and take the treatment for you he he you can have mine up here.


dpommo
1 year ago

Thanks for the offer but I’m eager to start treatment so will shift things around if I have to, just realised today I have no idea on what the wait time is!


marcyg921
1 year ago

I got diagnosed in November, had Round 1 at the beginning of February, wait time is different for each Hospital, all depends on the waiting list, if they have a bed available but most importantly, if you’re healthy enough. Some people wait months (even years) for the treatment so if you’re certain about going for Lemtrada then let your Doctor know and he’ll get you sorted asap, but really there is no time frame.


doubleo7hud
1 year ago

Worth a try, as the wheels only just been invented up here I feel I’m gonna have to wait a while, you lot down in yonder hell fire 🔥 (big smoke) get everything first. Glad pearl hats haven’t arrived up ere yet tho on a plus 👍

Peace outty ✌️


tracyd
1 year ago

@dpommo

It will depend on which hospital you would have the treatment at, do you know which london hospital it would be? Some of the others on here who’ve been treated there might be able to give you more infomration,


dpommo
1 year ago

@tracyd

It’ll be at Royal London/Barts – Gavin Giovannoni’s team, lucky me 🙂


tracyd
1 year ago

@dpommo

Ohhh lucky you …… Obi-Wan himself 🙂

You might also want to ask on the UK and Ireland Lemtrada FB group as I think a number of people have been ‘under Gavin’ (so to speak) LOL xxx


kattyazz
1 year ago

@tracyd you’re hilarious!!

@dpommo I’m also waiting to start but its kind of a guessing game as to when… the ball is rolling and given half my blood away for tests… We’ll see… next month or so I’m presuming xxx

Post Comment

You must be logged in to reply to this topic.