Last reply 3 years ago
Starting Campath or having children?

Dear MS community,

I have only been diagnosed with MS in January this year but have had 4, possibly 5 relapses (mild ones) already and my neuro says I’d be a good candidate for Campath. I’m going to be 29 in December and I know it’s silly but my biological clock is TICKING like hell.
My MS nurse told me that I’ll probably be ok to start the treatment soon this year and now I’m wondering: “should I go ahead and “lose” another 2 years before even trying for a baby, or have a baby and do it afterwards?” Thing is, I’m super stressed about my fertility as I have quite irregular periods as well and if I think too much about all of this I’m crumbling to pieces, so I mostly go around pretending everything is totally fine.. It’s difficult for me to remember I have MS, because if there is such a thing, so far it’s been kind of benign and not too disabling like for some of us, which makes me feel really guilty and I then find it easy to think of it as a passing ailment, wondering about misdiagnosis etc…..
I was wondering whether anyone else is going to go on Campath, has started it, been on it for a while and could share their experience? Or even if not, what do you think?

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stumbler
3 years ago

@mika, an understandable conundrum.

I’ve copied a link from the Barts MS Blog, where Tysabri was compared to Lemtrada (formerly Campath)
http://www.slideshare.net/fullscreen/gavingiovannoni/natalizumab-vs-alemtuzumab/1

You’ll notice that halfway down the Lemtrada column, that it suggests that pregnancy can be considered once the immune system has reconstituted. So, it would seem that Lemtrada is more “strategic” for family planning.

There’s been a few discussions on Lemtrada. Use the Forum search capability (magnifying glass top left) and search for Lemtrada.

@us-emma has firsthand experience of this treatment, so hopefully she will comment.


mika
3 years ago

Thank you @stumbler, I easily oversee the magnifying glass T_T I’ll use it more in future, thanks!


us-emma
3 years ago

Mika,

I was diagnosed at 29 and am now 40. I had Campath/Lemtrada/Alemtuzumab (all the same drug in case the names confuse you). I would love to share my story with you if it helps. I sent you a friend request in case you would like to talk in private.

I made a blog of my entire experience with Lemtrada at Lemtrada.blogspot.com

I also do a bit of reflection on the blog about the timing of Lemtrada throughout but most recently in a post I entered a few days ago.

There is a lot of info there going back to my decision back in March to go this route.

When I was diagnosed at 29 I was single without kids. I was married 2 years later and have a lot of experience with the pregnancy question. I don’t blog about that much but I am happy to share that part of my MS journey as well.

Take care,
Emma

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