Last reply 1 month ago
Stabbing ice pick headache

Hi everyone

Does anyone know much about the relationship between ice pick headaches and the formation of new lesions?

I’ve had the ice pick stabbing sensation for the last three days. It isn’t a migraine, the sensations are rapid, sporadic and fleeting, and very sharp.

This time last year, in the run up to presenting with optic neuritis (ON), my first medically verified symptom, I had similar stabbing pains behind the eye affected by ON.

The pain is bearable but this waiting game to see what symptoms might accompany the new lesion, if that’s what the sensation is indicating, is horrible.

Has anyone else experienced this kind of sensation linked to new lesions showing up on MRI, or new symptoms? How long after the sensations did the symptoms take to present?

Thanks

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


stumbler
1 month ago

@beefree , I would put out an urgent call to your MS Nurse.

There’s an expression that is used in MS, “Time is brain”, which basically means that you require timely interventions to minimise potential MS damage.


beefree
1 month ago

Thanks @stumbler.

My MS nurse is always busy and dismissive. I’m not in touch with her often but sometimes she doesn’t even reply. I think it’s because she’s stretched across a lot of patients.

Can I ask what intervention or response would be reasonable to expect from her in relation to this type of thing?

My neurologist is brilliant, and I could get in touch with him if absolutely necessary i.e. if the MS nurse isn’t being suitably responsive. But I don’t want to push things unnecessarily.

Do you think this is serious? It’s frustrating that her dismissiveness means that when anything happens or changes I see little point in contacting her.

Thanks


stumbler
1 month ago

@beefree, well, it should be your MS Nurse that makes a determination of what to do. Then, they can contact the neuro, if necessary.

But, I do understand your comments about the availability of your MS Nurse. I don’t envy their workloads.

A relapse is usually regarded as “the appearance of new symptoms, or the return of old symptoms, for a period of 24 hours or more – in the absence of a change in core body temperature or infection” (https://www.mssociety.org.uk/about-ms/types-of-ms/relapsing-remitting-ms).

The last part of that definition is very important, as these circumstances give rise to a “pseudo-exacerbation”, which resolves when the underlying cause is resolved. UTIs and colds/flus are examples of infections, which can give rise to this kind of situation.

So, in the absence of contact with your MS Nurse, you should contact your Neuro, if you fear that this may be a relapse. And explain the problems with contacting your MS Nurse.


beefree
1 month ago

Thanks @stumbler, for always responding with good advice.

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.