Last reply 3 years ago
So frustrated..

I just feel like I’m getting nowhere, I had the lumber puncture done over a month ago, to confirm the ms. Still no news, my legs are getting worst, everytime I stand up I need to sit again, so tired its unreal.
Feeling useless n sorry for myself

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3 years ago

I know that lumbar puncture results don’t come speedily. Why not give the neuro dept a ring and ask when you can expect them? xx

3 years ago

Hello magsmc,I am new on here so bear with me please,(slow typer with my tingly fingers!). Try to be upbeat.I was diagnosed with prog ms just yesterday at Shrewsbury Neuro. I don”t go for my spinal tap “til next Thurs!I am 55,and feel lucky that I wasn”t being told at age 25!Whilst waiting to see specialist,I spoke to stroke victims,amputees,and terminals;so I felt a bit better on the way home to Llanidloes knowing that us ms sufferers are still blessed with a life of sorts! So chin up my friend,and good luck! George.

3 years ago

@magsmc , good responses above.

Yes, see if the your Neuro’s secretary can help you with what’s going on.

Also, check this website for your local MS Nurses :- . They say that they are “open access”, so they may be another route for you.

And, you need to try and relax about the issue. I know it won’t be easy, but worrying about it won’t help at all. In fact, worrying and stressing can make this worse.

So, try and chill out. Be nice to yourself with a bit of pampering. 😉

3 years ago

Thanks for the replies 🙂 I’m on the review list, then I’ll get a letter from hospital. Hopefully not much longer now.
Just the waiting game…

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