Last reply 1 month ago
Sativex, anyone gettting it in the U.K?

Hello everyone I hope you are all well.
After a routine appointment with my MS nurse a few months ago it was suggested that I see a doctor in the pain management clinic with a view to me being prescribed Sativex.
I was surprised as I didn’t know it was available in England and asked if she thought I was suitable and was told that because of my sensitivity to baclofen and tizanadine I should be able to try Sativex to see if it would help with my spasms and spasticity.
I went to the appointment yesterday only to be told by the doctor that Sativex may only be prescribed as a last resort when all other suitable medications had been tried, he wants me to try Pregabalin and return in 3 months for an update.
I looked up Pregabalin and it’s list of side effects and it seems to be for nerve pain which is not something I suffer from so this drug doesn’t really seem suitable for the pain relief of spasticity and spasms. Do you think there’s any benefit for me taking this drug apart from the possibility of being closer to a Sativex prescription?

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stumbler
1 month ago

@sianny , prescription for Sativex in England are as rare as rockinghorse poop!

But, given the circumstances, you would seem to have a case. And, you’re quite right about Pregabalin being for neuropathic pain (https://www.mstrust.org.uk/a-z/pregabalin-lyrica).

Discuss your concerns with your MS Nurse and see if they can advise how to move this forwards.


sianny
1 month ago

Hi @stumbler,
Ha thanks, that’s what I thought (about the rocking horse poo) I just left a message for my MS nurse let’s see if she has any suggestions


simone2
1 month ago

Have you thought about taking CBD oil a lot of people says it works think you should buy 10% or over, I use cannabis with a vaporizer to help with pain and sleep.


sianny
1 month ago

Hi @simone2
I have tried using cannabis with a CRATER 420 which is not really vaporiser it worked especially well at night for getting back to sleep it relaxed my legs and definitely calmed me down but being an ex smoker (gave up over 10 years ago) I am worried about continuous use resulting in COPD as I already have signs of it.
Thanks 😀

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