This is a little shouting into the void, but also a small cry for help.
I recently moved from Brighton to Wolverhampton which obviously, on top of everything else that’s stressful about moving, included the whole transferring hospital thing. It’s the first time I’ve done so since being diagnosed.
Long story short, there’s been some communication and admin errors. I run flush out of Tecfidera (my MS medication) on Friday, and despite the new dispatch company having had all my details since last Thursday, they have STILL haven’t contacted me to arrange delivery of my new ones.
I’m likely to be going without any medication for a while until they can sort this out. I’m scared because of the reactions my nurses had whenever I missed even one dose in a month (by accident of course). I’m scared I’ll relapse and suffer some kind of horrible worsening of symptoms which wont go away. I’ve been so lucky so far, I just get the fatigue and a little bit of sensory loss, but I’m frightened I’ll get something much worse if I am off my meds.
So yeah… I guess this is mainly shouting into the void. I mean if any of you are in the UK, are on Tecfidera and willing to help a fellow sufferer out by sharing a week of emergency supply that would be nothing short of a miracle… however more likely if anyone has any support or comforting words those would be most welcome.
Note: I have already contacted MS Society Helpline, Tecfidera Support Line, my Neurologist, my Nurses and Biogen who supply the meds. My GP and pharmacies can’t help. So any advice based on these avenues is probably surplus. Thanks anyway 🙂
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