Last reply 4 months ago
Relapse then shingles

Just before Xmas I had some dizziness. Not unusual for me, got worse over the week. Felt like I was drunk and my brain was floating around in head. Went to doctor and tried to explain that I had something like this before, she was a locum so just gave me something for the dizziness. Then I became unsteady on my feet which got worse, with headaches nausea and double vision. I went to A & E as it was the weekend and thought they could give me something else as the tablets weren’t working. As soon as you say you have MS, everything gets blamed on that. The triage nurse was a little off with me. And the doctor got me to read off the eye chart and said that was fine. To which I replied yes with one eye closed everything is fine. But with both eyes open I am seeing double. She went off and came back and said I think you are having a relapse, go and see your MS nurse. I said can you give me something to stop the nausea as the other pills weren’t working. My MS nurse and the consultant were not impressed with my treatment at A & E. Turned out I had Nystagmus and was having a relapse. So had a course of steroid tablets, rather than the IV steroids as it was close to Xmas. The balance and dizziness cleared up before the double vision. So about four weeks in total.
Recently awoke in the night with pain in right side and then in back. Thought I might have a UTI, never had one before. Another visit to the doctor, treated for constipation, symptoms didn’t improve. Another visit to the doctor, 1 suppository and 8 laxido’s later, I woke in pain at 3am for 2 hours. Off to A & E, told of symptoms and the numbness of skin on back and stomach, itching and heat. Doctor noticed rash on back, told me I had shingles and gave me co-codamol. The next day spoke to my doctor who seemed puzzled that I had only been given pain killers. Have got antiviral tablets now. Hopefully back to normal soon. I know it’s a long post but I feel that every time I seek medical advice I have to justify my reasons. I know when something isn’t right and they need to ask the right questions Happy New Year!!!!!!!!!

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stumbler
4 months ago

@samyj , you have been going through it, haven’t you?

The problem we experience is that MS is a bit of a specialised, neurological condition. General medical doctors are a bit out of their depth with what to do.

It’s in situations like this, where we have to try and direct the medical professionals in the right direction. The more information we can provide on our condition can only help us to get the right treatment.

Let’s hope that this year can only get better for you. πŸ˜‰


samyj
4 months ago

@stumbler, thanks for your reply. I had mentioned as many symptoms as I could. But like you say doctors tend to put most things down to MS rather than look at the bigger picture. Even after 6 years of being diagnosed I am still learning more of how it affects me. I count myself lucky in that my last big relapse was 4 years ago. With just little things symptom wise the rest of the time. Onwards and upwards.


mlgilber1
4 months ago

I also just recently had shingles on the right side of my back and stomach. Went to the hospital for the pain and they said I had a UTI. Noticed the rash 2 days later so I went back and that’s when they told me and immediately started the antiviral. It tok at least a month for it to start clearing up and now it’s gone, but unfortunately I am experiencing some residual pain which my doctor is still hoping will go away with time. I hope you feel better.


jane_watts
4 months ago

@samij
You’ve been through the mill & bk again, I’m so sorry you’ve suffered so much & yes with some everything boils down to MS which is horrendous.
As for triage nurse my experience 2 years gone, was my mum with pneumonia OMG the triage nurse was a battle axe.
I really hope you start to feel better soon but I do know off hand to anyone who’s suffered shingles it takes quite some time to get over this it is harrowing I believe I’ve every sympathy in the world for anyone suffering shingles or have suffered.
You mind yourself & take care.
Jane πŸ’œ


grandma
4 months ago

Had Shingles myself about 2months ago. Tennant who was a nurse, put cream on my rash about 4pm, she went to work about9.30, rash spread by 10pm, put some more cream on and another dressing. Went to bed, woke up 2hrs later in agony. Rang ambulance cos I knew it wasn’t the ms, told the triage nurse I had ms but it wasn’t that! She actually believed me (you have to be quite straightforward) and put me down to see a doctor, it took them another 7 hrs and a blood test to confirm Shingles. A&E doctor gave me anti-vitals for a week. He was very nice and asked how I was getting home, I told him in a taxi, he was very concerned and asked if I hadn’t anyone at home who could pick me up. When I told him no, just a lodger, he insisted I call him at 6.00 am on a Saturday morning and he came for me. He was a pathologist and was cross that I hadn’t woken him up in the middle of the night and told him I was ringing an ambulance!

The upshot of all this is, even if you’ve got ms, by all means tell them, but insist that the two are not connected. A rash, especially if it’s on your chest, back or stomach, is very itch and appears within a fairly short time needs investigating. It is not your ms, don’t let them be easily led in blaming everything on the beast, we can get ordinary things wrong with us as wellπŸ₯ŠπŸ‘‚πŸ˜


samyj
4 months ago

@jane_watts thank you for your reply. Itching and pain seems worse at night, trying not to scratch. I know of people that have had a lot of pain with shingles. So fingers crossed it doesn’t get worse. Sam


samyj
4 months ago

@mlgilber1 have been given the antiviral tablets by doctor. He mentioned the pain that can last after, the pills are to try and prevent that. But as you have taken them and still getting pain after, perhaps they aren’t as preventative as they think. I hope your pain subsides soon. It’s good to know people know what I am talking about, as they have been through it. Take care x sam


samyj
4 months ago

@grandma did the cream work? Or help with the itching? Doctor said to put cold flannel on it and try not to scratch. Walking the dog in this cold weather seems to help. Perhaps I should stay outside lol . The trouble with going to A & E is when they are filling out their standard forms and ask if you have any medical conditions etc, you feel you have to mention MS. But then wish you hadn’t because they usually go down that route and rule other options out. Hey ho I will tell them what I think it might be next time lol Take care x


mlgilber1
4 months ago

@samyj They did give me the antiviral tablets and told me to continue taking gabapentin to help. I’ve since switched to Lyrica and it’s working much better. Feel better soon! Hope it goes away fast!


mlgilber1
4 months ago

I also used lidocaine patches and they’re very cold as well as to help numb. It would only give me an hour of relief at most.


jane_watts
4 months ago

@samij
Were you given a tub of Aqueous ? Wash in it Pat dry then re-apply this to effected areas, it’s natural cheap as nuts, it soothes, hold in fridge use as often as desired. It’s so silky to apply. You won’t like it but it soothes.
The pain always hits at night when you’re needing rest this is common.
Remember when showering Luke warm water not freezing cold not too hot.
When the shingles begin to abate, you are going to feel exhausted & totally drained it’ll take some time to get over this, shingles sap energy.
Try to eat this will help in recovery drink plenty of fluids too, water, fruit cordial etc., as I don’t know if your food intake has gone out the window as this can happen with the dreaded shingles. You will require bed rest.
I’m so sorry you’re having to deal with this, was wondering how you were but didn’t like to impose. Take care always Jane πŸ’œ


jane_watts
4 months ago

@samij
Sorry forgot one vital item,,,,,, stay away from anyone with chicken pox.


grandma
4 months ago

@samyj When the lodger, a nurse, put the cream on but I was undiagnosed then, but she had put Sudocreme (happy rash cream!) on. But it worked, and I continued to use it afterwards for a few days till my itching subsided. Never needed anything else, lucky because I was not offered anything by the A&E staff, so obviously they thought it was ok. Hope this us useful.πŸ™πŸ»πŸ˜œπŸ˜


jane_watts
4 months ago

@samij
Thank you for your reply.
Yes nights are worse & the itch.
Really hope there’s a turn around to the positive,,,, to lessen your discomfort.
Do try let us all know how you’re doing.
This will calm it’s the getting to that point is the boogie.
All positive thoughts sent out for your speedy recovery.
Jane πŸ’œ


samyj
4 months ago

@grandma I have some sudocreme, so will try that. You can also use it on the dog the vet told me. As long as I keep busy I don’t notice the itching. Thanks for the advice. Sam x


samyj
4 months ago

@jane_watts@mlgilber1 thank you for the advice. Just got vibrating/buzzing legs at the moment. It’s difficult to get a balance of resting and doing the things that need to be done. The dog gives me that look (lol) and I like to get it done so that I can rest. Keep well all and thank you for your support x x


grandma
4 months ago

@samyj Do try the Sudocreme! But I’ve also got an Airedale, very difficult to put cream on as he’s got a rather curly cost, and as he’s an old man (he’s 10) I don’t think I’ll be bothering him in the last couple of years of his lifeπŸ˜œπŸ•πŸ˜

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