So I have a question for those who were diagnosed with MS in their late teens/early twenties, more specifically, those that were diagnosed prior to having been able to stand on their own two feet (sorry, no pun intended) or finish their education/start their career.
How did the diagnosis change your plans for the future? What stage of your life was the diagnosis made (i.e A-levels, uni, job hunting) and do you feel your life was impacted immediately after the diagnosis or did it require the MS to get much worse before it had a significant impact on your life?
For those of you who are now past your early twenties and have managed to establish a career I’d very much like to know how having MS changed what your plans were (if at all) and, if it is not too personal a question, what you find yourselves doing now job-wise.
I ask these questions because I was diagnosed last year at the age of 20, but my first symptoms were at age 18. I am currently either going through the longest relapse known to man (16 months and counting) or I am transitioning over to SPMS or I just have some weird issues that aren’t being resolved. Either way, MS has had a HUGE impact on my life and I can barely walk, I’m not eating (just don’t feel hungry + nausea) and my cognitive abilities have been hit for six, plus a whole bunch of other things.
My entire life I’ve been a high flying student, going to uni with all A*s on my record since GCSEs, but now I am struggling to face the reality that I am a shell of what I once was. There is a big chance that I fail this year at university (it’s a shame since I completed first year with 80%) and am put out in the real world with no qualifications and a disability that makes me the least desirable job candidate since The Grinch. I clearly have a lot of doubts and concerns regarding the future, and at the moment things don’t really seem to be looking up for me.
Any advice and encouragement for this lost soul would be most appreciated, and if anyone is feeling like sharing their own story I think that would be really great! Thanks 🙂
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