Hi all. I have PPMS in Uk and recently asked my MS Nurse to arrange a review with my neurologist. I was told that people with PPMS are put on the ‘back burner’ by the neurologists. She said it was because not a lot can be done with PPMS sufferers and fewer people have it.
I was offered an appointment with her for about 3 months later.
She asked if there was any change in my symptoms. I said I had the same symptoms but sometimes they were worse than I had before. Fatigue, balance etc etc.
Has anybody else had a similar response with PPMS.
Bacically I feel I have been told to deal with it myself.
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