petlamb 17/01/18
Last reply 4 days ago
PIP Application

Hi Folks,

I had the dreaded brown envelope come through the door a couple of days ago and I’m now in the process of getting paperwork together to prepare my PIP application.

For those of you that have already been though the process, I was just wondering if any of you had been successful in securing a letter of support from your Consultant Neurologist. I’m seeing mixed responses online – with some Neuros downright refusing and others seemingly obliging, so I’m guessing that there’s no hard and fast rule and perhaps it just depends on the Consultants themselves.

Can any of you shine any light guys?

Thanks peeps

Suze xx 😊

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lesley-matt
3 months ago

First time I filled it in I ended up in tribunal cos they would.not accept the good and bad days.
I applied again still no luck k.
I then had a major relapse and was desperate for a car. Went into great detail and after adming for my claim to be updated it was and I got the higher rate for mobilirubin
I wont pretend it’s easy u just need to find the right wording. Try citizen advice of u are UK they will help
Lesley


pug1
3 months ago

Please contact citizens advice, my local cab has ms funded volunteers one came out to my home and filled the form in for me. I also had back up from my ms nurse. I had an initial phone call from the assessor who then spoke to my ms nurse, I was given full motability and full allowance care component within 6 weeks. I previously had DLA at high motability and middle rate care indefinitely not sure if that helped with my claim. As I have secondary progressive ms I have been signed off from the hospital neurologist I am in the care of my ms nurse if I have any problems.


nutshell88
3 months ago

I applied for DLA. At that time there was no hard rules but I know they keep changing. My neuro wrote a letter and I kept going to the GP for the ELA i guess because I was young to have PIP as they said. Honestly when i went to jobcentre some were strict but i always try to truly show parts of what im suffering thro my behaviours forget during convo lose focus can not see and its not lying i truly suffer that a week ago or a month after. In the last week for me in the uk i got a letter while leaving my front door saying i lost my benefits i didnt read it luckily never ruined my mood my house mate read it and told me when i arrived in saudi hehe πŸ™‚

My advice dont let stress u.

Good luck.


petlamb
3 months ago

@lesley-matt – Thanks for your input. I will try Citizens Advice. I’ve heard they’re very good so was considering going to them. Thank you! 😊


petlamb
3 months ago

@pug1 – Thanks for your advice. As I said to @lesley-matt, I will be arranging an appointment with the CAB. My MS is Secondary Progressive too and I am in receipt of DLA. Fingers crossed! I have also joined the online site Benefits and Work and for a small fee I can get access to some very useful information. 😊


petlamb
3 months ago

@nutshell88 – Thanks for your wise words on stress. It’s a valid point. Will try to be organised and not get wound up. Thanks for your input. πŸ™‚


holly12345
3 months ago

@petlamb
Been there done it and it’s not pretty but eventually successful just don’t give up and don’t let it stress you or upset you like it did me when I was turned down hence I went into a nasty relapse! Any advice just shout πŸ˜€πŸ˜€
Rebecca x


petlamb
3 months ago

Thanks @rebecca – duly noted. Will try to keep it together! πŸ™‚

Suze x


pdelaney27
3 months ago

Good luck the more evidence you have the better x


petlamb
3 months ago

@pdelaney27 – thank you! Trying to get all my ducks in a line! πŸ™‚

xx


andrewinripon
2 months ago

Although I was aware of the poor experiences people have had with the PIP process and slightly apprehensive because of it but I did find the process straight forward and without dispute. The transfer from the previous DLA happened smoothly and was conducted fairly.


petlamb
2 months ago

Thank you @andrewinripon πŸ™‚ – and CONGRATS! I’ve heard a mixture of good and bad experiences too. My deadline for submission is looming so once that’s done it’s a waiting game I guess . . . . . 🀞

Thanks for your input.


petlamb
2 months ago

Application submitted – waiting game started! 🀞


stumbler
2 months ago

Best of luck with it, @petlamb


dramaqueen
2 months ago

If you need your car formobility don’t tick any other box than ten metres or less or they will put you on standard rate mobility. This will not allow a car. They don’t care that most of us prefer to struggle with aids and try to drag ourselves as far as our body permits. I had to appeal via disability advice centre. Look at all the questions and answer them as if it is your worst day.


petlamb
2 months ago

Thank you, @stumbler


petlamb
2 months ago

Thanks @dramaqueen

There wasn’t a box for ten metres or less πŸ€” . . . . . . but luckily I don’t need my car for mobility. And yeah, I answered as if it was my worst day.

x


dramaqueen
2 months ago

best of luck.


petlamb
2 months ago

Many thanks @dramaqueen.

Think I will need it – BBC Breakfast had a 5 min piece on this morning about the many innacuracies in a good percentage of PIP assessments and there is a call for them all to be automatically recorded. Amen to that . . . . . if it happens of course. πŸ€”


paul2011
2 months ago

they don’t score you for your worst days….it’s how you are “the majority of days”


petlamb
2 months ago

Thanks Paul , duly noted. Appreciate your input.

Suze


grandma
2 months ago

Had my assent in October, all my DLA taken away including Mobility car. Have had MS for 24 years, had top rate for both personal care and Mobility, had carer for 23 years (other half) he had carers allowance but it stopped when he was 65 (apparently you don’t need help when you become a pensioner! He decided to end our 43 marriage as a result. One thing I can tell you, the only question I was asked about my Mobility car was could I plan a journey. Well of course I could plan one, executing that was a slightly different matter as one can’t use a sat nav if ones fingers don’t work! So it seems, certainly in my city, is the assessor, working for a private company, is only interested in those with a mental problem, if you are ‘normal’ you will lose your Mobility car. So lie on the form seems the only way to go. Of course it is all being appealed, but one gets no money or car while the appeal is being heard (at the moment, average wait is a year ) and so be very careful what you say. By the way, I am given to understand, that certainly in Stoke-on-Trent, there is no parking of any sort near the assessment offices and they have installed cameras so they can say to people ‘well you must be able to walk more than 20/50 yards because we have you on camera coming to the building. Be very carefu!


petlamb
2 months ago

@grandma

Abolutely disgusting treatment by DWP and their assessors. Shockingly underhand tactics. I am SO angered that you have been treated in this appalling manner and I am so sorry about your husband’s decision to end your marriage as a result.

Glad you’ve got the Appeal underway but have you contacted your local MP for support? Did you get help from the CAB to fill in your original form. If not, try to get their help for the Appeal process. Perhaps they will see an alternative way to answer the question about planning a journey. Seems to be rather open to misinterpretation to me. Maybe they wanted it tht way . . . . .

Stay strong. As your name suggests you have children, I’m presuming you have a strong family support network?

Thank you for sharing and for your advice and I wish you all the best for your Appeal. You have a Friend Request. Please keep in touch and let me know how it goes.

Suze xx


stumbler
2 months ago

@grandma , you might also consider contacting the Disability Law Service and see what they can do for you :-

http://dls.org.uk/


tootes
2 months ago

Really important point made about cameras installed or being watched on entrance to assessment. You are under scrutiny every”step” of the way. Many interview areas are over the 20 metre cut off. Remember and stop, don’t do the whole distance in one go. And there are often water coolers in the waiting area, so again they will make a snap judgement on dexterity if you take some water, just don’t take a drink. Your assessment is both questions and observations of you on the day.

And with answers remember that you are supposed to be judged on reliability, repeatedly and safely.

So are you in danger of tripping, falling, burning or cutting yourself if you try to do something, and have you fallen, burnt, cut yourself and when n and how often? We all fall, trip, scald ourselves with MS, and just take it as read, your assessor may not know or understand MS, you really need to spell it out. One woman I am aware of was told by her assess “I hope you get better soon!”. So seriously spell it out.

Can you do something, the same way, every time or does this vary? As with a fluctuating condition you are meant to be judged over 12 months, so do ask what time period they are looking at and specify because you have a fluctuating condition.

Then repeatedly, how many times can you do it in one day/week/month? If you are asked about doing something, then if you can do it once, add in that you couldn’t repeat that for the rest of the day/week/month. Plus you could be asked about the time it takes you, so it needs to be at least twice the time it takes someone without MS. I didn’t know this and didn’t answer as I should have. If walking old folks with sticks walk far quicker than me, then I definitely take at least twice the normal time, but I didn’t know to say this.

And do ensure that you bring up pain, so if something gives you pain then say. And don’t be afraid to repeatedly say “that is painful to do”. Pain is something that can’t always be seen and needs to be pointed out.

The last one that I got caught out on is the emotional liability that has come with my MS. Many folk aren’t aware of this symptom. When stressed I can and do end in floods of tears, very distressing for me and strangers don’t know how to react to you, it disturbs them. So if I get a sudden fright/shock the tears come, this includes being bumped into when out, which is a regular occurrence, so I don’t go to busy places, I need someone with me even in familiar places where there are crowds, even then I avoid crowds mostly. I avoid local buses as its too stressful. Think of the things you avoid and why, then use this for the mobility part and social interactions. We all have coping mechanisms, so we aren’t always aware of situations that do cause us issues, as we avoid them, only go with someone etc…

Plus you can record the interview, however there are conditions attach, so if you want to check these well in advance

Good luck.


petlamb
2 months ago

@tootes

Great information – thank you so much for taking the time to share. I appreciate the heads up on all these things. Food for thought indeed . . . . . . . πŸ€”

Thanks for your good luck wish. πŸ™‚

Suze


bullman
2 months ago

Hi
Although pain is invisible, a lot of people are prescribed pain medication and you are asked what medication you are prescribed. This should show the assessors the type and level of pain you endure.
Regards


piper71a
2 months ago

Hope everything goes well petlamb. Only advice I can give is the similar as other contributors. Tell them of your worse day. Don’t let the experience stress you. I’ll keep my fingers crossed for you.


petlamb
2 months ago

@bullman & @piper71a

Duly noted and thank you both for your wise words.

Have heard from them telling me the have received my completed PIP info and will be in touch shortly . . . . . . YIKES!

. . . . . brings to mind πŸ‘‡

. . . . . and hopefully they won’t tell me to πŸ‘‡

. . . . . fingers crossed ✌️ I’ll feel like this when I get the decision

As you can see, I’m trying not to stress about it! Thanks all, will let you know. 😊

Suze xx


stumbler
2 months ago

very good, @petlamb.

Let’s hope it’s not to much of this:-

then hopefully, some of this :-


tootes
2 months ago

Love the song choices. Sorry to labour this point but seriously your assessor may not fully understand your condition nor the meds you take. Unless your assessor gives a real indication of understanding your variation on MS, you really do need to spell things out.

I get the point over your list of meds, however having been told by someone that his wife lost her higher mobility element by an assessor who told her ” he hoped she gets better soon”, it is not always the case that your assessor will have full awareness of conditions or meds. They see a huge range of folks and conditions, but are not specialists, they are working to a limited and strict criteria and its about meeting those criteria.

I couldn’t tolerate certain meds, so my medication list doesn’t necessarily reflect my condition. So for pain, I wasn’t on the strongest painkillers, even when I really needed them.

So this is why I labour on spelling out things and not thinking your assessor will understand you, your condition and the place you are in on bad days. Sorry folks maybe I just didn’t have the best experience.


piper71a
2 months ago

Best philosophy to have petlamb. Good on you. πŸ‘πŸ‘


petlamb
1 month ago

@tootes @stumbler @piper71a – thank you for your comments and wise words! πŸ‘ 😊

Thank you for your persistence on this point Tootes. Of course, the completion and submission of the form only signifies reaching the halfway mark. The next chapter is just as (if not more) important. I have heard an awful lot of horror stories about the assessment process and PIP denials and fully intend to hammer the point home about how my condition affects me and for how much of the time.

I will ask the assessor what his/her medical background is and I will also ask how much they know about MS. I also have a severe hearing difficulty so the procedure is going to be interesting to say the least, but my husband will be there with me and he is a great support to me and understands MS to a tee. He is not afraid to speak up.

We will both be spelling things out. I have done a lot of research on this and have been compiling my submission for at least 18 months because I knew it was coming and getting ever closer. The assessor will be COMPLETELY clued up afterwards. Also, we ARE taping the interview. I will be informing them in advance and we have the correct equipment.

Of course, none of this will automatically guarantee me immediate success and if I get a refusal, there is always Mandatory Reconsideration, Appeal and then Tribunal and I will not hesitate to go the whole hog if I need to. πŸ’ͺ

Like with all the things that MS throws at you, the MS warrior in me will not give in. This gets me fired up πŸ‘‡

“Hope is a good thing, maybe the best of things, and no good thing ever dies” – Andy Dufresne, The Shawshank Redemption πŸ‘‡

Peace out guys and thank you to EVERYONE for your comments and input πŸ‘‡

Suze xx πŸ˜ƒ


hole2k12
2 weeks ago

Hi, for all those reading, a relative of mine used to work as a medical assessor for PIP and he helped me fill in my form for ESA. His advice to me was to fill in all the questions on the basis of me on my worst day and for anything that varied to use an example ie. “during a relapse I cannot do this, have to do that” etc. I didn’t even need a meeting, I was automatically approved for the support group. I know PIP is harder but hopefully this helps others!


petlamb
2 weeks ago

@hole2k12

Thanks for sharing this. πŸ‘

Suze x

😊


paul2011
2 weeks ago

“as your needs vary, my decision is based on the help you need the majority of days” (my PIP report) I was rejected. I think your worse days have to be 6 months of the year or more every year to score points for mobility.


petlamb
1 week ago

@paul2011

Jeez – must have been so darn disappointing. Are you appealing?

Thanks for the info – hope you can get it sorted soon.


petlamb
1 week ago

Hi folks,

Thought I’d give you an update on the PIP situation.

My home assessment was set for a date in March. On the day, we had a phone call 10 minutes beforehand saying the assessor was sick and assessment would have to be cancelled and re-booked. It was re-booked for today. Today no-one turned up but this time there was no phone call either.

Totally pissed off! My husband phoned to register a complaint and I am thinking about writing to our local MP. My husband is self-employed and he’s NOT happy about being messed around. What do you think guys?

Suze x


stumbler
1 week ago

@petlamb , whilst one no-show is annoying, two is taking the p*ss!

It’s the epitome of unprofessionalism and I’d take whatever steps are available to ensure that they know of your displeasure!


grandma
1 week ago

Totally agree with Stumbler. Time to get the MP involved. The staff problems are huge with the assessor, they don’t stay above a month or two, I heard from a nurse who assessed me for my electric wheelchair, she told me she had worked for them for a month and it only took a week or so to click on to what they were doing. It was her that told me THEY WERE PAID BONUSES for everyone they turned down. That was 6 months ago and I believe things are slowly changing and the private companies are now under the spying glass to make sure they do better and fairer in the future. Good Luck as you know I am going through the tribunal process at the moment, I have been told it will take 6-8 months for it to be heard, a summer without transport so hence no caravan and therefore no holidays, oh well thank you mr government!


petlamb
1 week ago

Hi @grandma and thanks for the very useful inside information. It beggars belief! Scandalous. πŸ™

Sincerely hope you get your situation sorted out. It’s a sorry state of affairs that we have to jump through these hoops to simply prove our case. Yes, there are going to be people that make false claims but surely they can be easier to spot and single out without taking a blanket approach?

So wrong that in the meantime, your benefit has been stopped and your life is turned upside down. Are you getting any help for the tribunal process – CAB or simillar?


grandma
1 week ago

Am getting help from Disability Solutions, they are helping me with representation at tribunal. No one else can because of lack of funding. I know I won’t do myself any good if I go alone, I am cross and will be very rude and sarcastic and probably won’t do myself any favours, so having a more dispassionate person, but never less someone with experience of disability should help, but we shouldn’t have to jump nthrough these hoops to get our due! Ah well, tribunal takes 6-8months to be heard (there goes another summer) so a long wait, oh well who said life was fair!😍


petlamb
1 week ago

@grandma

Very wise! I would be exactly the same. I’d find it very difficult to keep it zipped! 😀 🀐

I feel strongly about how you are being treated. If there’s any help I can provide, please PM me if you’re struggling with anything . . . . . I could provide an alternative view . . . .

Not just saying it as a throwaway remark – I mean it.

Suze x


stumbler
1 week ago

@petlamb , just received my regular email from the Benefits & Work website. Here’s the latest news :-

“In this edition we learn that the DWP is advising some claimants who were refused PIP mobility to claim again, but also admitting that they will then unlawfully refuse their claim for a second time.

The DWP has also confessed that current claimants are being illegally refused PIP mobility.

In addition, we discover that an increasing number of claimants are losing their benefits because PIP assessors doing home visits say there was no-one there when they called, but the claimant insists that the assessor never arrived.

We also learn that the Independent Complaints Commissioner (ICE) has a backlog of around a year and a half for complaints about the DWP.”

That’s a bit worrying, especially the bit I’ve highlighted!


petlamb
1 week ago

@stumbler – thanks for that – very interesting indeed. A total sham imho!

Have now been given a date of 25 April for my home assessment. So we’ll see what happens – 3rd time lucky?

My husband complained by telephone to Capita (which we recorded) and he was put through to the complaints department. After a long time on hold (not surprising), we were told we would have a formal response to our complaint by letter. When I don’t know because the guy he was speaking to didn’t sound all that clued up. He was so mad he asked to speak to the most senior manager and was told hat there wasn’t one on site. Yeah, right. When we do get the letter, he is going to contact our local MP, Sajid Javid, to see what pressure he can bring to bear.

TOTAL SHAMBLES.


petlamb
1 week ago

Following up on my husband’s complaint to Capita, I thought I should put the whole thing in writing, so at least there is some written evidence. I emailed it to Capita yesterday lunchtime. The called yesterday afternoon, stating that their response time will be 40 days! I think they’re thinking I’ll forget about it . . . . needless to say the date is marked on the calendar.

If I don’t get a response, I’m going to the ICE as well. Ironic really, because then I’ll have a wait of at least a year and a half.

. . . . . can’t win. πŸ˜•


hank
1 week ago

hi just to say i have been there , i had to go to tribunal which took 18 months , but dont give up , i want to wish you the best of luck .


petlamb
1 week ago

@hank – thanks for the good wishes 😊


brianputman2103
4 days ago

https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-points-system

use this link and make your symptoms fit the scores…

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