petlamb 17/01/18
Last reply 4 hours ago
PIP Application

Hi Folks,

I had the dreaded brown envelope come through the door a couple of days ago and I’m now in the process of getting paperwork together to prepare my PIP application.

For those of you that have already been though the process, I was just wondering if any of you had been successful in securing a letter of support from your Consultant Neurologist. I’m seeing mixed responses online – with some Neuros downright refusing and others seemingly obliging, so I’m guessing that there’s no hard and fast rule and perhaps it just depends on the Consultants themselves.

Can any of you shine any light guys?

Thanks peeps

Suze xx 😊

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lesley-matt
1 month ago

First time I filled it in I ended up in tribunal cos they would.not accept the good and bad days.
I applied again still no luck k.
I then had a major relapse and was desperate for a car. Went into great detail and after adming for my claim to be updated it was and I got the higher rate for mobilirubin
I wont pretend it’s easy u just need to find the right wording. Try citizen advice of u are UK they will help
Lesley


pug1
1 month ago

Please contact citizens advice, my local cab has ms funded volunteers one came out to my home and filled the form in for me. I also had back up from my ms nurse. I had an initial phone call from the assessor who then spoke to my ms nurse, I was given full motability and full allowance care component within 6 weeks. I previously had DLA at high motability and middle rate care indefinitely not sure if that helped with my claim. As I have secondary progressive ms I have been signed off from the hospital neurologist I am in the care of my ms nurse if I have any problems.


nutshell88
1 month ago

I applied for DLA. At that time there was no hard rules but I know they keep changing. My neuro wrote a letter and I kept going to the GP for the ELA i guess because I was young to have PIP as they said. Honestly when i went to jobcentre some were strict but i always try to truly show parts of what im suffering thro my behaviours forget during convo lose focus can not see and its not lying i truly suffer that a week ago or a month after. In the last week for me in the uk i got a letter while leaving my front door saying i lost my benefits i didnt read it luckily never ruined my mood my house mate read it and told me when i arrived in saudi hehe πŸ™‚

My advice dont let stress u.

Good luck.


petlamb
1 month ago

@lesley-matt – Thanks for your input. I will try Citizens Advice. I’ve heard they’re very good so was considering going to them. Thank you! 😊


petlamb
1 month ago

@pug1 – Thanks for your advice. As I said to @lesley-matt, I will be arranging an appointment with the CAB. My MS is Secondary Progressive too and I am in receipt of DLA. Fingers crossed! I have also joined the online site Benefits and Work and for a small fee I can get access to some very useful information. 😊


petlamb
1 month ago

@nutshell88 – Thanks for your wise words on stress. It’s a valid point. Will try to be organised and not get wound up. Thanks for your input. πŸ™‚


holly12345
1 month ago

@petlamb
Been there done it and it’s not pretty but eventually successful just don’t give up and don’t let it stress you or upset you like it did me when I was turned down hence I went into a nasty relapse! Any advice just shout πŸ˜€πŸ˜€
Rebecca x


petlamb
1 month ago

Thanks @rebecca – duly noted. Will try to keep it together! πŸ™‚

Suze x


pdelaney27
1 month ago

Good luck the more evidence you have the better x


petlamb
4 weeks ago

@pdelaney27 – thank you! Trying to get all my ducks in a line! πŸ™‚

xx


andrewinripon
1 week ago

Although I was aware of the poor experiences people have had with the PIP process and slightly apprehensive because of it but I did find the process straight forward and without dispute. The transfer from the previous DLA happened smoothly and was conducted fairly.


petlamb
1 week ago

Thank you @andrewinripon πŸ™‚ – and CONGRATS! I’ve heard a mixture of good and bad experiences too. My deadline for submission is looming so once that’s done it’s a waiting game I guess . . . . . 🀞

Thanks for your input.


petlamb
1 week ago

Application submitted – waiting game started! 🀞


stumbler
1 week ago

Best of luck with it, @petlamb


dramaqueen
1 week ago

If you need your car formobility don’t tick any other box than ten metres or less or they will put you on standard rate mobility. This will not allow a car. They don’t care that most of us prefer to struggle with aids and try to drag ourselves as far as our body permits. I had to appeal via disability advice centre. Look at all the questions and answer them as if it is your worst day.


petlamb
1 week ago

Thank you, @stumbler


petlamb
1 week ago

Thanks @dramaqueen

There wasn’t a box for ten metres or less πŸ€” . . . . . . but luckily I don’t need my car for mobility. And yeah, I answered as if it was my worst day.

x


dramaqueen
1 week ago

best of luck.


petlamb
6 days ago

Many thanks @dramaqueen.

Think I will need it – BBC Breakfast had a 5 min piece on this morning about the many innacuracies in a good percentage of PIP assessments and there is a call for them all to be automatically recorded. Amen to that . . . . . if it happens of course. πŸ€”


paul2011
2 days ago

they don’t score you for your worst days….it’s how you are “the majority of days”


petlamb
2 days ago

Thanks Paul , duly noted. Appreciate your input.

Suze


grandma
2 days ago

Had my assent in October, all my DLA taken away including Mobility car. Have had MS for 24 years, had top rate for both personal care and Mobility, had carer for 23 years (other half) he had carers allowance but it stopped when he was 65 (apparently you don’t need help when you become a pensioner! He decided to end our 43 marriage as a result. One thing I can tell you, the only question I was asked about my Mobility car was could I plan a journey. Well of course I could plan one, executing that was a slightly different matter as one can’t use a sat nav if ones fingers don’t work! So it seems, certainly in my city, is the assessor, working for a private company, is only interested in those with a mental problem, if you are ‘normal’ you will lose your Mobility car. So lie on the form seems the only way to go. Of course it is all being appealed, but one gets no money or car while the appeal is being heard (at the moment, average wait is a year ) and so be very careful what you say. By the way, I am given to understand, that certainly in Stoke-on-Trent, there is no parking of any sort near the assessment offices and they have installed cameras so they can say to people ‘well you must be able to walk more than 20/50 yards because we have you on camera coming to the building. Be very carefu!


petlamb
1 day ago

@grandma

Abolutely disgusting treatment by DWP and their assessors. Shockingly underhand tactics. I am SO angered that you have been treated in this appalling manner and I am so sorry about your husband’s decision to end your marriage as a result.

Glad you’ve got the Appeal underway but have you contacted your local MP for support? Did you get help from the CAB to fill in your original form. If not, try to get their help for the Appeal process. Perhaps they will see an alternative way to answer the question about planning a journey. Seems to be rather open to misinterpretation to me. Maybe they wanted it tht way . . . . .

Stay strong. As your name suggests you have children, I’m presuming you have a strong family support network?

Thank you for sharing and for your advice and I wish you all the best for your Appeal. You have a Friend Request. Please keep in touch and let me know how it goes.

Suze xx


stumbler
1 day ago

@grandma , you might also consider contacting the Disability Law Service and see what they can do for you :-

http://dls.org.uk/


tootes
1 day ago

Really important point made about cameras installed or being watched on entrance to assessment. You are under scrutiny every”step” of the way. Many interview areas are over the 20 metre cut off. Remember and stop, don’t do the whole distance in one go. And there are often water coolers in the waiting area, so again they will make a snap judgement on dexterity if you take some water, just don’t take a drink. Your assessment is both questions and observations of you on the day.

And with answers remember that you are supposed to be judged on reliability, repeatedly and safely.

So are you in danger of tripping, falling, burning or cutting yourself if you try to do something, and have you fallen, burnt, cut yourself and when n and how often? We all fall, trip, scald ourselves with MS, and just take it as read, your assessor may not know or understand MS, you really need to spell it out. One woman I am aware of was told by her assess “I hope you get better soon!”. So seriously spell it out.

Can you do something, the same way, every time or does this vary? As with a fluctuating condition you are meant to be judged over 12 months, so do ask what time period they are looking at and specify because you have a fluctuating condition.

Then repeatedly, how many times can you do it in one day/week/month? If you are asked about doing something, then if you can do it once, add in that you couldn’t repeat that for the rest of the day/week/month. Plus you could be asked about the time it takes you, so it needs to be at least twice the time it takes someone without MS. I didn’t know this and didn’t answer as I should have. If walking old folks with sticks walk far quicker than me, then I definitely take at least twice the normal time, but I didn’t know to say this.

And do ensure that you bring up pain, so if something gives you pain then say. And don’t be afraid to repeatedly say “that is painful to do”. Pain is something that can’t always be seen and needs to be pointed out.

The last one that I got caught out on is the emotional liability that has come with my MS. Many folk aren’t aware of this symptom. When stressed I can and do end in floods of tears, very distressing for me and strangers don’t know how to react to you, it disturbs them. So if I get a sudden fright/shock the tears come, this includes being bumped into when out, which is a regular occurrence, so I don’t go to busy places, I need someone with me even in familiar places where there are crowds, even then I avoid crowds mostly. I avoid local buses as its too stressful. Think of the things you avoid and why, then use this for the mobility part and social interactions. We all have coping mechanisms, so we aren’t always aware of situations that do cause us issues, as we avoid them, only go with someone etc…

Plus you can record the interview, however there are conditions attach, so if you want to check these well in advance

Good luck.


petlamb
1 day ago

@tootes

Great information – thank you so much for taking the time to share. I appreciate the heads up on all these things. Food for thought indeed . . . . . . . πŸ€”

Thanks for your good luck wish. πŸ™‚

Suze


bullman
4 hours ago

Hi
Although pain is invisible, a lot of people are prescribed pain medication and you are asked what medication you are prescribed. This should show the assessors the type and level of pain you endure.
Regards


piper71a
4 hours ago

Hope everything goes well petlamb. Only advice I can give is the similar as other contributors. Tell them of your worse day. Don’t let the experience stress you. I’ll keep my fingers crossed for you.

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