I know most of this site is about MS specific treatment – but I want to raise the profile of osteoporosis in people with MS.
I’m (only!) 53 and recently had a fracture neck of femur (NOF) and subsequent total hip replacement, after a simple slip. I was surrounded by patients in their 80s and 90s in hospital (much more usual age for NOF). But theres a big link between MS and osteoporosis!
From a DEXA scan, I’ve got osteoporosis in my other hip and osteopenia in my spine. Having avoided all medication (MS for 30 years – managing myself nicely, thank you!), I am now going to have to start alendronate – as that will reduce my fracture risk (after a year or so)
I think other MSers should think about osteoporosis.
NOW – before they get a fracture!
I’m sure its not just me who avoids sun (and so Vit D).
I’m sure its not just me who deconditions quickly (I saw my hard-fought-for muscles melting away – even during the surgical admission).
Other MSers who take steroids are even more at risk than me.
The inflammation of MS is thought to independently link into an increased risk of osteoporosis.
While it cant prevent 100%, why aren’t we being advised – strongly – to have adequate (higher than normal OTC) Vit D , and calcium?
Why aren’t we advised about earlier than normal DEXA scans?
THis might mean fewer people with my sort of problem! Please think about this for yourself!
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