hello, I am in the same boat as you I had ON in march and 2 old lesions that showed on an MRI. about a month after this my neurologists recommended a Lumbar Puncture. I have just come back from the doctor where my LP came back negative however, my neurologist is still recommending I take copaxone 3x a week because of the ON and lesions. about 8 /9 months prior to the ON I was experiencing other symptoms extreme fatigue , numbness and tingling, night sweats, swollen glands, poor balance, brain fog etc I went to my GP and had tests one but everything came back as normal although I truly felt something was wrong. now Im stuck trying to figure out if I should start the treatment or not. I much would have rather gotten a definitive diagnosis. although I don’t want to have MS its seem much better than “maybe having MS” and starting the treatment anyway. the number she gave me were something like 60% of ppl with lesion + optic neuritis get MS but I also have had history of high BP which she said could be the cause of the old lesions. she said 10% of people with proven MS have LP that come back as negative for the disease. She was not treating me during the initial issues I was having before the onset of the ON so she can not say if that was an MS episode but she says the symptoms sound like it. im so confused and I really don’t know what to do. Have you started treatment even though you were not diagnosed?
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