Last reply 3 months ago
oh, fatigue…

Hi! I have a little question. I know that many MSers struggle with fatigue, so maybe someone has similar experience. So, I currently study at university, and I fall asleep during lectures. And it shows in my grades. Morning classes are ok, but afternoon ones… It’s just impossible for me to stay awake. The more I try, the more distracted, angry and tired I am. And it’s not like the lectures are boring…
I don’t want to ask professors if I could record them, many of them wouldn’t allow that anyway, and relying on other people’s notes is risky. Do you know any way to stay awake?

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grandma
4 months ago

I find the afternoons very difficult, in I can sleep between 1-3 . If you are at uni,the staff should be able to help. Rescheduling, taping lectures in the afternoon etc., I am usually ok if I have had a sleep, so can do dinner, make some calls etc., but I am 62 and have had the beast for 24 years so am well used to my body and have learned what I can and can’t do. If you are falling asleep at this stage you have to find out what is normal/good for you because this is likely to carry on in working life and though employers are expected to make reasonable changes, but only if you are already employed by them, so you may need to look for work where you can work from home or in2 chunks, morning and late afternoon/early evening. Don’t what employment law is like in your country so find out all you can now and go from there.😍


stumbler
4 months ago

mrsmckay32617
4 months ago

my doctor put me on fatigue meds. might be something you wanna look into if you have not already. hope things get better for you


buitenmus
4 months ago

Maybe you can talk with someone from the social or study office about the problem? I guess if they explain the professors about the necessity of recording lessons? Maybe you can suggest signing a form about not sharing your recordings, cause they are just for personnal use? Maybe they are more understanding than you think. And so you don’t have to bring it up in class.


adamframpton
4 months ago

I am also currently suffering from fatigue and have been put on a medication called amantadine.

have a look on the MS website as there are a few options in this area and then discuss with your specialist if you feel his is the route you would like to go down.


aromastoff
4 months ago

Dear mrsmckay32617, would you mind sharing what you’ve been given?
And adamframpton, how are you getting on with amantadine, if you don’t mind me asking? I’ve been told I could have some if I felt this was the right thing (I am struggling 4 out of 7 days with severe fatigue). Would love to hear your experience with what you’re taking. Thanks!


ryba
4 months ago

@grandma I Will check employment law, it’s a great idea, thank you! I’m still getting used to all of this. Baby steps, right? 🙂

@stumbler thank you! I couldn’t find it 🙂


stumbler
4 months ago

@ryba , the two links I provided are correct. What was it that you couldn’t find?


dominics
4 months ago

I have just completed 5y at university (am 49, late starter!). History undergraduate and politics postgrad at pretty intense institutions.

Are you in the UK? If so then any decent institution is going to have a decent disabled students set-up. When I eventually mentioned it as fatigue was a real issue during my PG then they couldn’t do enough to help. I was given decent extensions./ Someone else I know had a v competent notetaker that attended on their behalf and recorded the lectures. The academics seemed totally unphased by this.

My neuro rx’d modafinil which suddenly made me feel normal again. I’d caveat any remark about drugs by saying that they are hugely context specific. There may be a host of reasons why something that is touted by others sounds good but it unsuitable for you.

Main message is to engage with your institution. Don’t hide anything and then suffer for it later. They were both great. You are a 9k a year customer so they treat you better now it is a competitive market.

Feel free to PM if you’d prefer.


dominics
4 months ago

I’ve just clocked that you are from Poland. That doesn’t mean you aren’t studying in the UK but you may not be, so anything I say may well not apply.

What degree are you reading for?


ryba
4 months ago

@stumbler yes, the links are correct, I saw them a few days before writing this post, and then wanted to read them but couldn’t find them again. Sorry for misunderstanding!


stumbler
4 months ago

No problem, @ryba , misunderstandings are an occupational hazard with MS. 😉


strictlysoca
3 months ago

Hi @ryba. From what I understand from Polish colleagues there are changes taking place towards disabled people and scampaigns to implement the UN convention. You are also covered by EU law which supports equality for people with disabilities.

In my experience thinking we know the answer to the question means the answer is always no. You have come up with a solution which also could involve recording as well as drugs. Try explaining your needs to the head of your school or department rather than individual proffs. This will save you having to talk to all. Go to the top 🙂

I now work in university student support and we use lecture capture technology so students with disabilities are not singled out but it is a service for all. Times are changing and EU law is behind it.


strictlysoca
3 months ago

Haha not scampaigns but campaigns. Scam plus campaign = probably someone with a miracle cure story 🙂


ryba
3 months ago

@mrsmckay32617 @adamframpton
I’ve already been on meds, but they were quite expensive, and they weren’t that effective for me (memotropil). If it gets worse I will probably try again with another meds.

@buitenmus That’s a great idea, I’ll see what I can do. Thank you!

@dominics
I study in Poland, first year of eastern studies. Actually my uni is really great with disabled students. I was given extensions too, especially after my first attack. To be honest I completely forgot that we have the Office for Persons with Disabilities. I’ll visit them after summer break. 🙂

@strictlysoca
I might not be able to talk to head of the department, but you gave me idea on who I should go to, thank you! I hope that my university will think about similar solutions. Also, scampaign is a great word. 😀

While writing the replies I thought that I might be exaggerating my problem, and there are many different solutions. Maybe a bit different from what I wanted but still effective.
Thank you all for kind words!

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