Last reply 4 months ago
Ocrevus so soon?

Hey MSers!

I was dx July last year with PPMS at 28. First symptom for which I consulted a neurologist was drop foot when walking more than, say, 600-700 mts. Nothing major but I felt it weird. However, I suffered from increasingly reduced libido and some sexual dysfunction since 2013, without nothing apparently wrong with me.

The emotional impact of the diagnosis was tremendous. I was used to living in a perfectly healthy body. I secluded from social contact, avoided gatherings where I felt I had to stand up for long periods of time, constantly paranoid about being hugged and loosing balance.

First dose of OCREVUS on Jan 15th, 2019.
Second dose of OCREVUS on Jan 30th, 2019.

I suffered from gastric distress after a few days of both infusions… I believe my gastrointestinal system does not like steroids. :/

GI side effects from steroids slowly disappeared.

My question is:

Is it possible that I am feeling my right leg (the one with the drop foot) to be slightly stronger so soon? Last night, I danced for like an hour and I felt normal. Temperature was perfect though, I have to admit.

I’ve never been on another DMT, but so far I’m satisfied with Ocrevus. (or maybe its just me feeling safer on a DMT).

What are your thoughts?

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4 months ago

I’d think the small dose of steroids would’ve worn off by now, but it’s too soon to say it’s the Ocrevus, but that’s awesome! It took me a couple months before I felt better. Now I’m a month away from my full dose and feel like crap again. My infusion can’t come fast enough!

4 months ago

I’m thinking it probably is the steroids… took a couple weeks for mine to wear off.

4 months ago

@fxms , it’s awesome that you are feeling that improvements are happening.

You have age on your side, which is a bonus as you probably have a fair neuronal reserve. Once your body stops attacking itself, it is able to then to start attempting recovery of existing damage.

Don’t question your good fortune, just enjoy the good times.

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