Last reply 1 week ago
Ocrevus

Hey everyone! After a bad relapse my MS specialist and I decided to do Ocrevus (was on Tecfidera) and I was just wondering if anyone has tried it or knows someone who has and what their experience with it was like. Also, they are doing further specialty blood tests (even though my first blood test came back negative) to see if I have Neuromyelitis Optica (NMO/ Devics disease) in addition to the MS because one of my lesions was really big and the amount of pain I’m in all the time is more consistent with NMO. Also, they suspect NMO because the steroids don’t help me, but plasmapheresis does. Does anyone have any knowledge on NMO, I haven’t found a lot. Thank you all so much and have a wonderful day!

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stumbler
1 week ago

@mlgilber1 , it’s at times like this that being enigmatic is not a positive! 😕

But, you’re right, there isn’t a lot of information available about NMO. Well not any user forums that I could find.

I did find this page from our NHS, which I hope may prove useful :-

http://www.nmouk.nhs.uk/resources-useful-links

I wish you good luck with the Ocrevus. This is a relatively new treatment, so there’s not many comments about it. An Ocrevus link has been added above at the foot of your post. Select this link to access previous posts, which refer to Ocrevus.


mlgilber1
1 week ago

@stumbler Thank you so much, I appreciate it!

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