Last reply 1 year ago
Numbness – how does it feel?


I have been diagnosed with RIS (Radiologically Isolated Syndrome) – basically I have quite some lesions that I accidentally found out about, but never had any symptoms (female, 29-years old).

I have a 6-month old daughter and about 3 months ago I started to experience some kind of numbness in my back. My back hurts frequently when I lift her and I do not pay attention to keeping a correct position of my whole body, but sometimes, maybe one per month, I feel some kind of diffuse numbness that goes away in 2-3 minutes if I correct my back’s position.

A few of days ago I started to feel this numbness again, in various areas of my back. It lasts under a minute and then disappears, only to reappear in another area, some hours later or the next day.

How would you describe the numbness you feel?
Is it diffuse?
Does it last long?
Do you feel it in the same area all the time or it changes area every time it reappears?

I’m trying to figure out whether I should consider it a first symptom of MS or not. I’m quite confused.

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1 year ago

Hey @obilex

Sorry to hear you are in pain. Numbness is one of the most bizzare symptoms in the world! I have had it in both my legs, tummy, arms and face. But when I have had it has been for prolonged periods of time – months. In fact me legs and feet have not been normal since end of 2014, they are not completely numb but the sensations are not completely the way they should be. It just feels like they are not there at times. With my arms and hands I can at times have trouble with fine detail if that makes sense? I amso have issues with knowing if I am touching something that is biling hot or freezing lol

Not sure if this helps to answer your question or not but maybe someone else with more experince will be along soon to help you!

Avril x

1 year ago

Hi @obelix , aren’t you a friend of Asterix the Gaul? Or am I showing my age?

MS can present with an infuriating array of sysmptoms, . If you experience some localised back numbness after lifting a weight, sorry, your daughter, then this could well be a posture problem.

So, how did you accidentally find out about your lesions? RIS seems to be a new term these days. There’s been a few terms used over the past years, Transverse Myelitis, Clinically Isolated Syndrome (CIS), etc.. These aren’t definitive diagnoses, just an acknowledgement that something’s gone on and a wait and see approach has been decided.

Dr Google won’t help you answer this conundrum. So, go and see your GP and get referred back to Neurology to explore this further.

1 year ago

I have had a numb area diagonally across my back for ten years it comes and goes and it always in the same area. My thighs go numb after I have been standing for a while, if I sit down it will go away, if there is no place to sit the numb areas will start burning. My numb areas feel like my foot does when it has fallen asleep when it first starts. Potter

1 year ago

My right leg got really uncontrollably and insatiably itchy with no reason, that went away after a couple of weeks only to reappear after a couple of days on my right collar bone and top of arm, that went away after weeks but left me with partial numbness reaching from my face to my finger tips, and in my toes. It has reduced in area and now only goes from a bit above my elbow to my finger tips and toes, and it is not as numb as it was, it still feels like I’m wearing a rubber glove though, it has stayed at that level for months now.

I think you’re best off pursuing it with the doctor, if nothing else it’s worth finding out what it is so that if it’s posture related you can learn how to keep your back in good condition!

1 year ago

@obelix Congratulation on you baby girl 😀

I’ve experienced numbness in my face last spring, it started next to my nose and spread slowly to the entire left side of my face. It was like being stuck at the beginning of the waking up phase from the aesthetic at the dentist, it lasted for about a month, strangely, it seems that drinking plenty of water made it go away and it never came back.

Carry on being mindful of your posture to avoid the pain, and rest and relax as much as you can. Take care of yourself

1 year ago

I don’t get numbness in my back but I have had it pretty much everywhere else. Feet have gone numb like they have been in the cold to long, half my face went numb it felt like I was injected with novacaine, three months of biting my tongue, not fun at all. Any other numb sensation has felt like that area had a pinched nerve or fell asleep. In regards to your back it’s best to have it checked out by the dr and work off your scans and go from there. My initial symptoms with my ms were what felt like anxiety/panic attacks and bad migraines, numb spots on the back of my head along with hand tremors. Everyone’s different with their Ms so we have to constantly rule out the obvious first.

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