Last reply 4 months ago
Non-progressive/benign(?) MS

Hello all.

I was originally diagnosed with MS in 2002. Optical neuritis was my main symptom – in the following years I had a few unexplained falls, just walking one moment and dropping on the pavement the other, developed depression, hypothyroidism (connected? I don’t know) and fatigue.

My last check was 2 years ago, and was given this Non-Progressive diagnosis (apparently I only have a SMALL black spot on my spine….’but do come back if anything changes’….

I’m feeling quite abandoned, to be honest. I am always tired, feeling sick tired, I need to parse my energies very carefully, I have diffuse ache in my back and lower body, my legs are pained/or stiff…some brain frog and random dyslexia (which, yes, I note, because I am a writer and I am used to use my brain and linguistic skills..)

It’s like, because my symptoms are not dramatic enough – and I try to hold myself together and deal with it, then I can be ignored. 🙁

Any advice/ideas/comments?

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4 months ago

When are you due another MRI? Keep nagging the GP!

4 months ago

@cosine thanks for replying! There is no MRI due, as far as I know, ‘unless I develop new symptoms’… I will talk to my GP, yes, thank you.

4 months ago

@sil67 , yes, I agree. Your GP is your Primary Care Provider so should be your first point of contact. They will decide whether to refer you back to the Neurologist or not.

4 months ago

Hello @sil67, you definitely need a maintenance check if nothing else. When you say random dyslexia, do you mean getting letters mixed up? T the very least, would be good to get some blood tests which you could get through your GP. All the best

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