carlsb 31/03/15
Last reply 1 year ago
Night Sweats and temperature control

Hi Everyone,

I’ve been diagnosed with RRMS for about 2 years now. I haven’t been put on any medication yet, though we’ve come to a decision to get me on Tecfidera in the next few months. However over the last 8 months I’ve had regular night sweats and I just wondered if this is another ‘common’ symptom that other MS’ers get? He’s running blood tests to rule out other things before I go on Tecfidera, but my doctor didn’t seem to think it was that common a symptom.

I seem to go to bed with extremely cold feet and hands (plus tips of my nose) most nights despite being warm everywhere else, and then awake in a pool of sweat around my face and torso. Lovely!

Does anyone else have this problem?

Thanks in advance!

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3 years ago

@carlsb , MS attacks our Central Nervous System (CNS), which is the brain or our spinal column.

Now, a lesion on the brain could actually interfere with the body’s thermostat function, which can give cause to your night sweats.

The cold feet and hands, also known as your extremities, are the furthestmost points from your brain. MS damage affects the successful transmission of signals from the nerve endings to the brain.

So, if your brain isn’t receiving the correct information from your hands and feet, it isn’t able to regulate the correct responses.

Hope this helps. πŸ˜‰

3 years ago

Hey there! Ok so I can’t confirm if it’s normal or not, but I too experience that. Thought maybe it would help to know you’re not alone ☺️

3 years ago

Same here.

3 years ago

I’m either really cold or far to hot there just spent seem to be a happy medium.

3 years ago

Hey, I was diagnosed with RRMS 2 months ago. I’ve had severe night sweats for last 6 months but they stopped when I started taking a high dose vitamin D supplement – not sure if just a coincidence?

I’m due to start Tecfidera shortly too.

3 years ago

@carlsb yup i get it to, so by the sounds of it it’s normal lol.. i literally need to have a fan on me all day otherwise my eyes fog over and I think I’m gna pass out, but I also freeze in other areas like legs n feet and top arms so just cant win.. i guess invest in a fan for the evening it will definitely help in the summer

3 years ago

I am on a high dose vit d and copaxone. Let us know if you find a cure πŸ™‚

3 years ago

I had night sweats in the year leading up to my first major attack. I would wake up and have to change shirts and/or sheets. I wished I had known then what I know now and found a neurologist that was smart enough to DX me. That was 10 years ago and the DMT choices then were pretty limited. I didn’t even have a GP or know what a neurologist was! You guys need to act on this info and get a smart neurologist to figure out what’s going on. If he says this isn’t normal then may I suggest you need another neurologist, a MS specialist. @stumbler is right about his description. I am extremely heat intolerant now and have limbs that routinely will turn ice cold. If you can start a DMT that would prevent further damage to this part of the brain, I HIGHLY RECOMMEND! Severe heat intolerance is very disabling by itself. Add the myriad of other symptoms you can get with MS and you get my point how important timely DX and trtmt is!

3 years ago

Thank you all so much for all the comments and feedback! Didn’t really connect the lesions in that way with temperature control, but makes perfect sense @stumbler. Thank you. The Vitamin D is interesting as well.. will chat to my doc and Nurse some more on this. Cheers guys!

3 years ago

I assumed I was just menopausal! I constantly wake up drenched and have only just read somewhere that night sweats can be a symptom of MS. Am actually quite relieved. I suffer from poor circulation, and still suffer with chilblains. Can’t help but wonder if poor circulation is connected to MS?

3 years ago

@lisajane , MS is all about damage to our Central Nervous Systems (CNS), which affects the messages being sent from our nerve ending to our brain.

So, I would say that bad circulation could be attributable to MS. If your brain isn’t getting the right messages from your feet, then your brain wouldn’t know that they’re cold and to increase the blood flow to resolve.

Do keep an eye on your feet as poor circulation, due to MS, can be addressed with other medications. πŸ˜‰

3 years ago

Hi, I am incredibly warm running during the day (sweat like I’m at the gym a lot), and then at night, I freeze. The other side of that, is my skin is normal temperature all day and at night, I get super heated. Sort of like having a fever every night. I chalk it up to my MS as it has been this way for many years. My hands, feet and nose are usually cold until I fall asleep πŸ™‚

3 years ago

Yes, I get all that. My night-time routine is to put on thermal bedsocks, fill a hot water bottle then get into bed in my air-conditioned bedroom.

3 years ago

I started suffering night sweats pretty soon after diagnosis and decided it was Ms. Then I got day sweats, then I remembered my age and sex and went to a gynecologist. Yup it was the menopause, brought on by the shock of diagnosis no doubt . Nice little hormone patches got rid of that symptom for me and taught me an important lesson about how everything isn’t Ms . I see from the age and sex of many of you suffering night sweats that my story is irrelevant , but for some reading this post it maybe worth considering. Good luck to all!

1 year ago

I read with great interest, the comments posted here from last year. I googled sweats , cold feet ….etc and found the comments. I signed up so I could comment. I have not been diagnosed yet but awaiting 2 MRIs just before Christmas.
I have Sjogren’s Syndrome and suffer with terrible fatigue and several other symptoms. My balance has gotten worse during the last 6 months and my legs don’t work like they used to. I now need to use a cane when outdoors
My hands go numb at night so I wear splints to bed.
I have trouble walking up stairs and out of breath by the time I get to the top and feel light headed.
Circulation in my legs is bad, legs cold and feet are blue when sitting
I am 58 and hot flashes eased off a few years ago, but now faced with these terrible hot flashes and always feel hot! I always used to feel cold, but not any more. Turned furnace down several degrees , wear short sleeve tops and still hot. I would open my bedroom window but don’t want to freeze out my husband.
Just wondering if I may have MS

1 year ago

Hi @lace and welcome.

Whilst your present symptoms are indicative of MS, they also present in various other conditions too. This is why MS is so notoriously difficult to diagnose.

Your clinical history is an important part of the jigsaw, so if you can recall any previous unexplained medical issues, then do let your Consultant know.

1 year ago

Thanks @stumbler for your comments. I have read that Sjogren’s symptoms (an autoimmune disease that affects moisture producing parts of the body) and can be similar to MS symptoms. I have not found anything that talks about circulation issues and the temperature problems that I am facing. I am hoping that this is all just part of my Sjogren’s but I still worry. I have been waiting 4 months now for the MRIs on my brain and spine … just another month now!

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