Last reply 10 months ago
Newly Diagnosed/New to Forum

Just turned 50 years young and proud of it. I am a wife and a mother of 4, 2 of them have 4 legs. I was told I had MS in 2015 but due to me breaking my neck in 2 places and my back in 3 places after a fall down the stairs, didn’t get a definite diagnose until a few weeks ago after my lumbar puncture. I know that I have had MS for quite some time possible during my teenage years. In 2004 I was told I had Lupus but after 12 now 13 years it was not Lupus it is MS. I have learned a lot having to deal with my oldest child because he has a severe case of MS for his age. He didn’t start treatment until decades later this is why his quality of life is so diminished. My daughter also has MS so our household is quite unique. I have a lot of disorders that makes me different from others. I was diagnosed with Diabetes when I was 13. I have RA, asthma, dyastolic dysfunction, dyastolic heart failure, stage 3 kidney disease, fibromyalgia, muscular neuralgia, peripheal,poly and autonomic neuropathy, retroperitoneal fibrosis, sleep apnea, hypersomnia, insomnia, sjogrens syndrome, hypertension, raynauds syndrome, Osteoarthritis hip, Osteoarthritis back, Osteoarthritis neck, Osteoarthritis both knees, Osteoarthritis shoulder, Osteoarthritis hands, osteopenia, acid reflux, Piriformis Syndrome, Occipital Neuralgia, Sciatica, Stage 4 Endometriosis, Scoliosis, Rotary Cuff disorder, Bursitis of both shoulders, Closed dislocated neck on my left side and recovering from a broken neck on my right side, and Incontinence. I live in pain all day everyday but no one has any idea what I go through other than my immediate family. Even though my life is hard, I am truly blessed and not depressed at least not yet. I was reading comments on this site this is why I joined, the best medicine is when you can get honest opinions by people who live with this disease on a daily. Every day I am still learning and I need all the help I can get. In a few weeks I have to inform my neurologist on my preference of treatment. I am leaning toward copaxone so I am hoping I can tolerate it without too many side effects.

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lilbird
1 year ago

Hello & welcome @sonja1966

That’s quite a list you have there! Honestly I’m a little overwhelmed just reading it all so the fact that you seem so positive with it is pretty impressive! Between yourself & your children you must have extensive experience of dealing with disease & with the medical profession! If you do have gaps in your knowledge though, this is certainly the best place to come for answers 😊


potter
1 year ago

If you have any questions we will try to answer. You probably know more about different drugs than a lot of us and you can also help. Welcome to the forum. Potter

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