Last reply 1 month ago
new symptom

I was diagnosed in July 2017 after the second official relapse and been OK since. Started on Copaxone in March 2018. I’ve recently been experiencing intermittent pins and needles in my left hand. The tips of my thumb and two fingers are also numb. I don’t know whether I should report this to my MS nurse? If this means that the MS is still active then I’d probably be open to trying a harder DMD now. I just don’t know whether I would bother the MS nurse with this?

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vixen
1 month ago

Hello @peppergirl. Definitely contact your nurse, not because this is alarming, but because you’ve only been diagnosed a year and still need to work out the difference between a flare-up, exacerbation, relapse, set-back etc. I am in the exact same boat, having been diagnosed nearly two years. In the beginning, I felt like I was on the phone to the nurse quite often. Now, if there is a flare up I don’t even bother because after the last episode I had, there were no new lesions or flare ups on the mri. At least if you call, it gets logged and over time, you and the professionals may he able to build up a pattern and begin to understand how your MS works. Hope this helps a little x 😊


peppergirl
1 month ago

thanks @vixen i’ll do that


mlgilber1
1 month ago

@peppergirl I was always told to report any new symptoms or worsening of symptoms that last longer than 24 hours. I understand how you feel though, I’m always afraid I’ll bother her with something trivial, but it’s good just to find out for sure. I hope you’re doing well and that this goes away completely soon. Best of luck!


peppergirl
1 month ago

thanks @mlgilber1


grandma
1 month ago

I’m an old hand but I agree with both Vixen and mlgilber1, report it to your ms nurse (assuming you have one)!if it lasts more th a day or so😍

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