Last reply 1 year ago
New here!

Hi everyone! I can’t believe I haven’t found this site before! I’m really here just looking for friendship and support. I live in a small town and so it is pretty lonely on the MS front. I have been having a rough time over Christmas/New Year because it is really hot here in Australia at the moment. I went to my General Practitioner, because I had the ‘MS Hug’ which was a new symptom for me. A heap of bloods, a chest CT and an abdominal Ultrasound later my GP conceeded that there was nothing wrong with me but that it couldn’t be MS because pain is not an MS symptom……*sigh* So that is pretty much what I am facing here. There is only one neurologist in my area and the closest MS specialist is 3 hours away. Anyway…..I look forward to getting to know you all!

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stumbler
1 year ago

Hi @appleislegal and welcome.

General Practitioners (GPs) are just that, general. So, we don’t expect them to be experts on MS and its symptoms, especially things like the MS Hug, aka Banding.

If you’re looking for peer support, then we’re all here in cyberspace. But, you may want to subscribe to the Australian’s with MS Group, which you’ll find here :-

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potter
1 year ago

Your not alone I live in a area with almost 500,000 people and the nearest MS specialist is 3 hours away. We have a dozen neuro’s who are always booked up for a year. My GP put me off on a neuro recommendation for ten years even though I had relatives with MS. You will hear many stories just like mine here. More than that you can find some very helpful information, understanding and caring. Welcome to the group. Potter


flipflopfan
1 year ago

Welcome @appleislegal !

Yes GPs are very general….i found that my MS nurse has been brilliant when i experience new symptoms and want to check i am not being a hypochondriac (i felt that for a while!). The weirdest being really itchy skin when exercising at the gym! A quick phonecall put my mind at rest
Not sure if you have access to an MS team in the same way..?
Welcome to cyberspace though x

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