Hello friends. What a week! 10yrs of not being dx, diffinalty ended Sunday. First let me start off by introducing myself. I’m almost 41, military wife, mother, grand mother. 10 yrs ago my husband was deployed. I was working fulltime raising kids..my norm. Long story short, eye sight went in left eye, major head ache, leg tremors, spots on MRI, negative spinal, steroids, weakness. 3 neurologist over few years where unsure of MS. “Wanted to wait for another flair up. Lesions where there just not in part of brain that is considered MS”. Thursday, similar situations. At work, mind you my husband is again away for military training, eye sight starts to go at beging of words, migraine, n 2 hours later I struggled to talk by Friday I was not able to lift my right leg off the bed.
Neuro said MRI showed small lesion n it is MS. I dont believe he specializes in MS but prescribed me Tecfidera. While laying here I seem to second guess everything. 1st 10 yrs ago drs chalked my symptoms up to ” stress of husband being deployed” made me feel like i was lying, attention seeking. My husband has never seen me at my weakest point with all these issues. Yes, weakness, fatigue, issues with heat but never bed ridden like this. There is a part of me diffinatly fearful to explain my symptoms n situation due to being labled attention seeking or untruthful. 2nd despite knowing POSSIBLY I could have MS is totally different then having MS. IM surprised on my emotions. 3rd my last dose of IV steroids was 4 days ago n I have been sleeping since. In so sick of being tired! When do I know I can start taking walks n implementing small excersise, without over doin it? Am I even being realistic? My baseline is over doing everything!! So many questions…. thanks for letting me share.
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