Hi everyone, I have not been commenting because I don’t feel well these days. I went through the terrible LP and finally recovered from it after 4 weeks, only to find the results were negative. I have been on prednisone for 5 years due to lupus, and now I learn that prednisone can affect the results of a LP. Nice that my neuro did not tell me, after all that. He just said that he preferred I was off of the pred. Now he wants to see if I have autonomic sjogrens which takes us in a new direction. I wonder if anyone here has had both or either or for a diagnosis. I was diagnosed with sjogrens a few years ago but never had a lip biopsy. Now my neuro wants me to have a lip biopsy to confirm sjogrens. So how is he going to tell if my autonomic symptoms are from MS or Sjogrens? Is it worth another creepy test that I have to go through. I am afraid of being off prednison without being hospitalized, I literally cannot get out of bed without it. I will become very ataxic, worse than now, and have all the symptoms that I have now only severely increased. I have tried to taped off and it is a nightmare. I stop thinking, I get depressed, I lose my balance, cannot walk, the incontinence is increased, I am nauseated and cannot swallow. I dont want to go through being that way just he can prove that I have sjogrens. freaking out a little here. life is bad enough and then I will be making it worse. .I just want to get some treatment and get well. I am mad that the neuro put all his eggs in one basket with the LP, that he said is 99 percent accurate for MS.
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