So I’ve had my official diagnosis of MS from neurologist of which neither of us were surprised. Had already explained what was expected to my partner and family but everyone seems a lot more taken aback than I excpected. I’ve decided that the best course of action for me is to stay as upbeat as possible, I don’t want to stop anything I’m doing (nothing bad, just my horse and being fairly active) I just think I need to alter the way I do things, slow down etc but I’m getting very mixed signals from those around me. Half don’t believe me, some are behaving like I have a terminal illness and, as I care for my mum, her response was that she feels awkward now me looking after her if I think that she should be looking after me (which I don’t, just trying to explain that I can’t do as much as quickly as I used to). I know that no one can tell me how I feel but I don’t know if I’m being naive or irresponsible just taking whatever tomorrow brings, or not taking it seriously enough. I’m finding ordinary things much harder than I used to but just plodding along. I feel like I’m supposed to be making huge lifestyle changes instead. Any words of wisdom are hugely appreciated!
Last reply 3 weeks ago