Hello all, you may remember that me and my brother-in-law met with an MP in Parliament, speaking about how PPMS folk in the U.K. are denied access to Ocrevus, and about how people in different constituencies and local authorities access better or poorer services depending on where they live. Have had a great response from the MP’s office as follows (have left out names):
BEGINNING: (The MP) has now met with the MS Society and has sent the letter to the Secretary of State for Health and Social Care to raise the issue with him.
When he met the MS Society, they mentioned an event that they are holding in Westminster this coming Monday, I’ve included the details below. The MS Society suggested we pass the invite along to (you and the sisters) if you would like to attend. Please do let me know if you would and I’ll let the MS Society know.
(The MP) has also tabled some written questions to the Secretary of State about Ocrelizumab and has applied to hold a debate in December on this issue, I’ll let you know if he is successful in obtaining a debate.
The MS Society also suggested that their comms team would be keen to speak you to understand more about your story and explore whether they might be able to do some media work to keep the pressure up on the Government on this issue. Is this something you’d consider doing? END
So, we may be little people, but we can still keep fighting for our stories to be heard, and to bring attention to both the difficulties and injustices we face. Will keep you all posted x
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