I’m due to have my first appointment with the MS nurse in September and I was wondering if anyone could give me any hints on what to expect from the initial appointment?
My MS doc told me he wants me to start on dmds straight away and just to go and read about all of them (despite the fact I can practically quote the MS society page already ha). Will the nurse give me a choice of the drugs or maybe two options to choose from? Is it the nurse that then gives me these drugs? How long do the appointments usually last (or is it more of a how long is a piece of string type deal?)
A bit of background for me, I’m 30yr old female who is (was?) very active with sports. I trained BJJ, Muay Thai and ran 5 miles every other day and more on the weekends. I regularly wander around taking photographs of dilapidated buildings too.
I had a hot flush down my leg in November last year that lasted two weeks, then I started to get tingles from my lower back down my legs which were irritating but not too bad. I went caving in Paris for four days and it got significantly worse. Doctor said there was nothing wrong and to just rest and see how I felt.
Over Christmas 2016, my feet and shins started to go numb and I woke up in January numb from my ribs down! I could still walk but I wasn’t remotely confident due to the sensation. Que emergency MRI, oral steroids and a lumbar puncture later and I’m told it’s MS and I have extremely low folate. I then had a further relapse in June which just resulted in my right knee going numb for 6 weeks and so here we are, the new and not so improved RRMS version of me who does yoga every day and is greatly attempting to run more than two miles in any one go!
Sorry for blathering on!
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