I’ve had an unusual (for me) new symptom for about 10 days now. It’s a bit of a mystery, and I’m really curious whether anyone else recognises anything like this. I did report it to the MS nurse, and she said it may or may not be MS, and the thing she seemed to suspect most was shingles. She said I should keep a really good look out for a rash – but I definitely still haven’t got one!
It’s a kind of nerve pain in my left torso, which seen seems to go in a band around the lower ribs. The skin is numb all around the left side – but with reduced feeling, rather than none at all. (It’s strange for me to have something on the left, as I normally only feel MS-y things on the right.)
It started as a kind of ‘phantom itch’, which I couldn’t actually scratch if I wanted to. (I hurt the skin at the beginning, before I realised what was going on.) It’s developed into more of a dull pain now, which can be concentrated either at the front or the back. It varies in intensity from being hardly there to quite painful, and can wake me up in the night. It tends to be better in the morning and worsen as the day goes on. If I do try and scratch, or even just feel around to see if it’s changed, it quickly becomes more hypersensitive and painful.
I’m getting used to it now (although hoping it won’t stick around for too long) but I don’t much like the element of mystery. I was reading up about MS hug, which can apparently be one-sided, but the descriptions are so varied it’s hard to know. It would be brilliant to hear from any of you experienced people how ‘MS-y’ (or not) it sounds to you.
Thank you very much for reading!