Last reply 1 year ago
MS Blog

Hello fellow MSers!

Do any of you blog about your MS? Or have you come across any blogs about MS that you’ve found helpful?

The background behind the question is:

My first clear symptom of MS was optic neuritis. When the hospital consultant diagnosed it, he simply said ‘Don’t Google it!’. I didn’t ask why, but naturally went home and Googled it. From there I read how optic neuritis was often one of the first symptoms of MS, Googled ‘Multiple Sclerosis’ – I’m fairly certain for one reason or another I added ‘video’ to my search – and landed on an article and video on the Guardian website about a woman who had progressive MS and had written poetry about it. She had reached a stage where she was almost paralysed, couldn’t speak or feed herself. I was devastated.

I’ve since learnt that while at times challenging, having MS is by no means all doom and gloom! For me it’s had some incredibly positive impacts on life. I’d like to write about them – to have a blog – so if there’s just one new MSer that stumbles on it, being diagnosed isn’t quite the same baptism of fire that I went through.

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rachelc
1 year ago

Just to add, the lady the Guardian article was about had an amazing sense of humour and immensely positive outlook.


rosiem
1 year ago

Hi @rachelc – I highly recommend blogging. It’s a great way to express and process how you’re feeling and a great way to connect with others in the MS community and to know you’re not alone.

Here’s the link to my blog: https://sherunswithms.wordpress.com

I love reading other MS blogs too. Here’s a small selection of some of the ones I follow:

https://keifib.wordpress.com
https://republicofemma.wordpress.com
https://able2access.wordpress.com
https://irelandms.com
https://trippingthroughtreacle.wordpress.com

And MS Ireland have a great community blog:
http://ms-society.ie/ms-and-me/blogs


emma77
1 year ago

Hi. Exactly the same words have been said to me. I got ON last Aug. Now left with quite severe damage and loss of vision. My MRI shows lesions. The Opthalmologist said MS but then said “Dont Google”, as if??
I would be very interested in reading your blog.
Emma

The same thing happened to me, I woke up one day with a “smudge” I could see in my eye end ended up 6 days later with no vision in my left eye.. the doctors told me the same thing don’t google it.. and naturally, like you did. I googled lol it was a scary thought but it definitely lessoned the “blow” of the news


storm
1 year ago

Hi!
I always read the stumbling in flats blog & laugh & cry along with Barbara the author.


rachelc
1 year ago

Thank you so much for the comments, they’ve really spurred me on.

@rosiem That’s a beautiful photo of you. I’m a runner and graphic designer too. Thank you for the links. I’ll have a proper read as soon as I can. I haven’t come across any MS blogs before but was inspired by the blog of a New York bicycle builder called Ezra. Well worth a read if you have a moment:

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@emma77 I’ve set myself the challenge of having the bare bones up and running by the end of next week, so not too long to wait. I’ll post here when it’s live.

@nikitadawndelorey Oh man, the ‘Don’t Google it’ comment. I would have preferred to have been given the lowdown by a professional. Leaving people to inevitably Google it allows so much margin for Google-error-doom-and-gloom.

@storm What I’ve read of Stumbling in Flats is brilliant! Thank you for letting me know about it.


storm
1 year ago

Glad to help….There is a stumbling in flats book which is a collection of Barbara’s blogs which may be worth a read?
Best Wishes,
Storm.

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