Last reply 4 months ago
MS and low grade temps

Hi folks, new here and hoping for some advice please. I was wondering if anyone has problems regulating their temperature because of MS? I’m hovering everyday with a low grade temp between 37.6 to around 38.3c, even when my hands (I also have Raynauds) are freezing to touch! I had a recent MRI scan and although I have new lesions, I don’t have any on my hypothalamus, so I’m stumped. I am not long out of hospital for having Sepsis and even though my temp was higher when I had it, having this constant low grade temp is making me paranoid! I spoke to my GP but he isn’t sure what’s causing it either. Thanks xx

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stumbler
4 months ago

@dizzyjc , this problem is potentially caused by damage on your Central Nervous System (CNS), which is preventing/maladjusting the messages from your nerve endings to your brain. As the brain doesn’t know what’s going on at the nerve endings, it can’t manage this area correctly and sensory issues occur.

There’s a couple of old posts about a drug, Nifedipine, which might help. Use the Forum Search function (magnifying glass, top left), to locate them. It may be worth discussing with your GP.

By the way, I’m NOT a medical person.


dizzyjc
4 months ago

@stumbler- thank you so much for your helpful reply! 😊 Makes a lot of sense what you’re saying about the nerve endings messing up the messages in the brain. I’ll look up this Nifedipine, thanks! I would honestly do just about anything right now to be rid of these temps as they make me feel quite unwell.

I’m very glad I have joined this site and thanks again for pointing me in the right direction. It’s much appreciated. Hoping you’re as well as can be and looking forward to Christmas. πŸŽ„


vixen
4 months ago

@dizzyjc, yep, I struggle with regulating temperature too, mainly when at home. One minute hot, the next needing to add a layer of clothes. Feet tend to remain on the cold side. I’ve given up trying to fathom out this condition and now make sure I’m prepared for all eventualities!


dizzyjc
4 months ago

@vixen (not sure I’ve quite worked out how to tag another just yet lol) thanks for replying but I’m sorry you suffer too! It’s awful isn’t it? My hands because of the Raynauds (and my feet actually when I think about it) tend to be cold but the rest of me is very warm. It’s reassuring to hear I’m not alone but sorry you have to go through this too. Hope you have a lovely Christmas and it’s a good health day for you! πŸŽ„


stephz
4 months ago

Hi @dizzyjc I have similar issues – a lack of info getting from hands/feet to brain. I recently got a pair of fleeced lined wrist warmers and they really help in keeping my hands warm…I wear them around the house too until t hands feel warm enough…


grandma
4 months ago

@dizzyjc I assume you’re in the uk, (you said gp, a bit of a clue) I’ve just bought a pair If warmers from Lidl, Β£2, and the best couple of quid ive spent in a long time. You can re-use them a1 ,000 times, put them in you pockets, or in my case on the handles if my mobility scooter (can’t wear gloves, no feeling in my hands, so can’t have anything that interfere with what little feeling I’ve got) they might be useful when you are feeling the cold, down your trouser leg or in your socks if necessary. Best Christmas wishesπŸ‘πŸ“―πŸŒ²πŸ˜


dizzyjc
4 months ago

Hi @stephz,

Thank you 😊 I’ll look into getting myself a pair! Hope you had a lovely Christmas and best wishes for the new year!


dizzyjc
4 months ago

Hi @grandma

That’s great to know, thank you! I’ve got a Lidl nearby, so that works perfect. I hope you had a lovely Christmas and have a happy, healthy new year. Best wishes πŸŽ„πŸ˜Š

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