So lets upset everybody.
I have Primary Progressive MS, diagnosed 9 years ago so I am officially part of the forum but my ideas are a bit different.
I do not think there is a simple cause of MS, like a disease bacterial or viral, which can be treated. Sadly is is very like a lottery, there are millions of potential combinations which have no effect whatsoever. There is a combination which can have an effect, sometimes a partial effect which can be “treated”, hence the miracle cures, or fully effective which cannot be treated but it can be alleviated..
This is NOT DOOM and GLOOM, the symptoms can be alleviated both in frequency and severity and the treatments are improving all the time. Yes the Autoimmune System makes holes in the Myelin sheath which covers the nerve bundles but it can also repair the damage and can be assisted, this is where I suspect diet can be effective. I say suspect because I am not a Vegan or Vegetarian, I just try to stay fit and healthy.
I smile when sufferers list what they cannot do, say they cannot run. OK, I ask when was the last time you ran prior to diagnosis, it was usually decades ago, so that is not really a “can’t do” anymore. So go through what you used to do recently but cannot do easily anymore, the list just got shorter.
I used to drive and decided to stop about three years ago because my reactions were too slow and were becoming dangerous. I swapped the car for a mobility scooter and using a combination of scooter and train I can go everywhere faster and easier than I could before. I also bought a a smaller collapsible scooter that I take abroad on holiday, so far I have done the Rocky Mountaineer in Canada and a trip to New York for some retail therapy, done a tour of North and South New Zealand and a three week tour of Italy.
As I always say “I am not DISABLED I am DIFFERENTLY ABLED” so are many people I meet. MS is not the end, it is simply a readjustment and adapting to changed circumstances. I am not an evangelist, I an just being practical, there is a whole world out there and you are part of it.
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