Just a little intro to me and a rundown of my story…
I’m Leona, and a little over 4 years ago, about age 32, I started having tremors around the same time that I started going numb. It started on my abdomen and then ran around my side and up my back and neck and then eventually was numb even on part of my scalp. I went to see a neurologist and he gave me the “working diagnosis” of MS… which was a shock! Then he did lab work and an MRI and ended up calling it clinically isolated syndrome.
So, now 4 years later I still have tremors, that have never went away but haven’t gotten worse either. That original numbness is gone though. But a month or two ago, I started having these weird feelings in one of my legs. Just this weird, warm sensation that runs down my leg and it really feels like I peed on myself! It’s happening often enough that i got worried and made an appt with the neurologist next week. And there’s one area on my arm that’s doing something similar but not exactly the same. Hard to describe it, its kind of like it’s just waking up from being asleep, kind of a little tingly but a different temperature sensation too.
So anyway. I really didn’t think this would turn into MS, for some reason. But now I’m afraid that’s the news I’ll get before long.
Idk what I’m looking for… advice or just a welcome or somebody to say they relate to those weird sensations…
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