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robw
3 weeks ago

My dad unfortunately passed from a heart attack about a month ago at the age of 71. He had battled MS for the past 15 years of his life. He had such a great attitude. I miss him dearly. Dad had secondary progressive MS.

The reason for this post is that approximately 4 months ago, Dad had a UTI and when tested it was some type of “super infection”. Upon receiving the phone call to go to the ER to get treated intravenously, he did so, and came home that evening better than he had been in 10+ years. This lasted several weeks. Energy, enthusiasm, mental clarity, you name it. We asked his GP if he could get another round of this treatment about a month later and the physician responded with a “no, your dad would have to be diagnosed with still having this infection and we can’t be giving super infection antibiotics to everyone, as this is a last line defense for the general public.” I don’t want to get anyone’s hopes up, but I am convinced, concerning my dad, the treatment he received, at least temporarily kicked MS’s a## for several weeks. It also wasn’t the day of clarity or so that some dying people have days before their demise. This was immediate, long and sustained. Although he didn’t get up from his wheelchair and walk, he sure as heck benefited from this treatment.
I hope this helps someone and God speed to everyone that suffers from or has a loved one that suffers from this suck a## disease.


stumbler
3 weeks ago

@lightningduck , I assume that you are referring to “Anthony William, the one and only Medical Medium”.

It sounds a wonderful idea, but if it’s so good, why isn’t it practised more widely to rid the world of all these ills. I’m always sceptical about evangelists. Although, evangelism seems to be a good business model……


dominics
3 weeks ago

@stumbler has got it regarding Mediums.

I’ll be more direct: anything alternative makes some people feel good for participating. They have a scary and presently incurable disease and when an apparently magical way (often pitched as derived from ancient peoples and a special secret that big-pharma is trying to suppress etc) is offered and the group of advocates gives a feeling of acceptance, validation and inclusion then people who are scared and desperate cling on. There is a well-documented set of behaviours regarding the methods used – often unconsciously – to validate one’s own choises to go outside of the normal routes. It annoys me because usually, at the bottom of all this is some way to lighten your wallet.

If you are in the UK there was recently a superb radio program called The Digital Human that looked at how the internet is allowing snake-oil sellers to flourish. I’d urge anyone to listen. https://goo.gl/3RAVnB

There is some legitimate research regarding whether MS is a neurological (brain) or haematological (blood) issue.

If you have HSCT the Haemotologists are far more involved as it comes to stripping your immune system down and then attempting to rebuild it afresh. These debates are all happening at quite a theoretical level at the moment.


lightningduck
3 weeks ago

Yeah, @stumbler, that’s the guy. There is a group here in town that meets to discuss his ideas, etc… and after a little looking I was generally in agreement that it was a sham but I was tempted to attend a get-together just to get a better idea of what they were selling


cameron
3 weeks ago

(I’ve also posted this on a different thread, but it’s relevant here). I have a friend with advanced MS who additionally suffered from severe fatigue. Typically, she would have to lie down several times a day, even though she is in a wheelchair so was never exerting herself physically. She felt this was the ‘straw that broke the camel’s back’, in that it prevented her from doing anything palliative for her symptoms. She’s always been in favour of supplements, homoeopathy etc., none of which appear to have altered the MS. She’s not been on a DMD either. So when she told me about the Medical Medium book I didn’t pay much attention to what became her regime: i.e. a supplement of juiced organic celery. Her husband prepares it in a juicer – one head of celery for each of them, daily before breakfast. Otherwise, no dietary changes or routines – they’re not veggies, gluten-free etc. The MS hasn’t changed but the fatigue is gone completely. She no longer takes rests in the day. Her husband says he has never felt healthier. If this is placebo effect, it’s very long-lasting, because this started a year ago. I don’t understand it at all but I’m delighted for her.

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