Hi at the moment I am in limbo, I am 37 and started with pain in my hips which went on for a very long time on and off but became worse I was constantly tired and had numb feet and toes so I went to gp who referred me to the neuro I had a spinal mri which was clear in jan, since then my pain has become much worse especially at nights and has turned into a burning sensation in my legs like they are on fire, I am exhausted by afternoon and can sleep for 3 hours mid afternoon.
Since I last seen neuro my balance is all over the place and I keep falling over things, sometimes it’s like am drunk it’s the only way I can describe it when am wobbly.
I often find myself tripping over my words and say the wrong thing like fingers instead of toes, I often drop things at my work am constantly fighting this incredible tiredness.
I am on medication for nerve pain and I have low vitamin D levels too.
I am back to see neuro at the end of the month had nerve conduction studies on my legs which I was told was fine, I am at the stage I need answers as I don’t know what’s causing all of this ….. I suspect it’s ms.
I am under a lot of stress at the moment and I seem to be much worse again.
Would be nice to talk to people that understand how difficult this is and any tips advice would be greatly received
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