Hi guys, this may be a bit lengthy and I’m not the most articulated of folks, so please bare with me. I would appreciate some feedback/opinions.
My mum has Primary Progressive MS, she has very poor mobility, wobbling around the house with the use of hand rails and is wheelchair dependent outside.
Over the last few years, she’s had ongoing issues with Kidney Stones. She’s had invasive surgery a few times to blast the stones and also had several sessions of lithotripsy (soundwave blasting). She’s currently waiting for further surgery for stones on each kidney.
My mum has problems with urine stagnation, which we’re told is a common problem in folks with MS. This could well be the cause of the stones, along with having a reduced mobility.
The last few weeks, my mum has had several oopps moments as she’s been unable to get to the bathroom on time. As you can imagine, this is embarrassing and she’s getting really down about it. We’ve had the incontinence nurse over a few times, but she can’t do a proper assesment as my mum has the kidney stones. My mum is wondering if now is the time to go for a catheter. She feels she will benefit from it. However, we get the impression that this is the last resort from the incontinence nurse. We were thinking if the stones are caused by the stagnating urine and the reduced mobility, this is probably going to be a never ending circle of infections and kidney stones. The nurse is really encouraging for her to wait it out! But it’s really exhausting my mum, along with myself. She’s a battler, she’s never let her MS phase her, but this is too much for her.
Please let us know what you think, should we really push for her to have a catheter or should we trust the experts? It would be nice to hear from folks who have been in similar situations.
Thanks for your time 🙂
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