Last reply 3 years ago
LEMTRADA: where in England can I get it?

Hi all. I want to start Lemtrada but it seems that currently no local hospitals are ready to administer it. So basically, help! Where do you go? I live in Shropshire but would go anywhere – I’ve heard great things about this drug and want to come off Tysabri sooner rather than later. Looking forward to hearing from you.

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krisp
3 years ago

Hey Emma
I’m sure if you contact the nhs they can tell you where it’s being done, that and the national Ms society, I know that a lot on here use Southampton i think?
What’s made you decide on lemtrada?


Anonymous
3 years ago

I would contact NHS England who commission the drug.


tracyd
3 years ago

There’s a facebook group called Lentrada for UK and Ireland which keeps a list of all the hospitals people who are members of the group are being treated, it’s a pretty extensive list. Unfortunately I can’t seem to grab it to copy and paste here from my mobile 🙁


stumbler
3 years ago

tracyd
3 years ago

That’s the one @stumbler


serankin
3 years ago

If your neurologist will give it to you mine wouldn’t! Cambridge NHS (it was developed there) and Bart’s London do it.


Anonymous
3 years ago

@serankin, Ask your neurologist to live with uncontrolled MS. You need to move on and find someone to prescribe it for you. Don’t let one neurologist’s ignorance or prejudice condemn you to a lifetime of disabilities. I have been on all of the strongest DMTs that at best claim they slow down MS progression. They did what they claimed for me and now after 9 years I am disabled and waiting for my chance with Lemtrada. I only wish that I had the chance for Lemtrada earlier to avoid so much pain and suffering. Don’t regret that YOU did not push harder for your chance at halting MS!


Anonymous
3 years ago

BTW, I have 2 new kittens. I decided this new avatar would help “soften” my online image! 🙂


mumofmser
3 years ago

The give it at Salford Royal in Manchester

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