I’ve been researching Lemtrada – currently on Tecfidera, but I have had a fairly nasty relapse since taking it, and don’t want to wait and see if the Tecfidera kicks in at some point! I’ve only ever taken Tecfidera. Diagnosed in 2015 after a major relapse and second relapse 13 months later. My MRIs showed old lesions hence my diagnosis after one (known) relapse.
Lemtrada isn’t offered in my local Trust. I saw a general neurologist last December and am having another MRI and follow-up in March. I shall be wanting to discuss changing to Lemtrada but I don’t see how the general neurologist or the MS Neurologist could discuss this with me as it isn’t offered as a treatment. Can I get a referral to another MS neurologist at a Trust where it is offered?
I’m pretty sure that I have a handle on the pros and cons, and that I meet the criteria for taking Lemtrada, but if I have no entitlement to be referred to a hospital that offers Lemtrada then I don’t know what to do next.
Any help/advice gratefully received!
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