Hi guys! Currently on day #2 of steroids for yet another relapse, which is a poop, but as my third relapse on Gilenya has the advantage of my Neuro now being happy to look at Lemtrada for me. I am having a workup in the next few months (Haematologist, Immunologist etc, as have some other factors in life could make Lemtrada complex – but still going for it!).
So looking at Sept/Oct after all this is sorted.
Need to discuss time off work with my managers and am wondering what others experiences are? They will need to arrange back-fill (so need at least 2 months notice – which means I have to plan for time off). What are others experiences in this regard? What type of work do you do and how long did you need off after Lemtrada? What was the reason? (fatigue, increased symptoms or immune crash?) How did you tackle this discussion with your employer?
I asked my neuro and he said 2-6 weeks, and did not say if this includes infusion week. Very helpful…
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